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Thyrants Week of November 9th – 15th
Robyn Davis Hahn – Fighting a cold all week…this morning it won. Sore throat + “lump” in throat = unhappy.
Kathleen Taylor – In a state of grieving right now, so there’s not much that I can handle; but, what I am finding amazing is that I CAN feel! I am so happy to be able to feel pain, anguish, and sadness and celebrate that fact. Tears come and come and come and underneath I am so happy to be able to feel the pain. I have had times with this thyroid disease that I have … felt numb, felt absolutely nothing; nothing in; nothing out; nothing to give and that to me is the absolute scariest part of the disease. What would happen to me if I could not feel any of this? I shudder at the thought. I will feel happy again. It takes time, I know. But, right now I am digging in with both feet to feel the pain; and then; let it go.
Laura Chen – Thyroid sucks…why can’t anyone help, I mean us, the ones who have no regular lives due to this ugly butterfly thing they call thyroid! Why can’t there be an Einstein for thyroidism!!! Einstein where are u!!! All this money, spent on meds, trying new doctors who don’t care, insurance companies love us, but we need help! Where are u Einstein!!!!
Lori Caprio Callahan – I have some good news, yahoo. I finally figured out why I kept waking up all night long. I was using my hormone cream before I went to bed. Now I use it in the morning and I sleep so much better and of course, I feel better during the day and I have less falling asleep during the day.
Cyndi Potts Woodruff – Ahhhh, ladies…..I’m just so tired this week. And last week… lots of stress, lots of homework and I’m exhausted.
Vivian Brugman Berry – I’ve been tired since 2002. That is after I did the RAI pill. I have not achieved that level of energy yet.
Anita Roberts – Well, I’m in an “up” phase with the hashi’s, energy coming back online, optimistic, lower inflammation, etc. so, since i have little to fret about I will instead send all my support, compassion and encouragement to you ladies who are struggling. We are a team!!! Through the tears, the fog, the pain and the re-awakenings, we are a strong, purposeful team. So there!
Sarina Favazza-Bray – I walked into my first cancer center today and felt I was socked in the guts…tears flowed and it hit me hard…emotions are running high right now and I don’t like it…more cat scans and a PET scan tooo… didn’t radiation of some sore give me this thyroid cancer and now I’m being radiated more and more each day with all these damn scans.
Amy Elizabeth Parker – I have unexplained leg pain. Bottoms of my feet, ankles, knees, legs, and hips. I have had four different labs done. Nothing comes up. I want to know! How can I treat if I do not know what is going on? Who else has chronic unexplained leg pain? At least my doctor keeps digging!
Vivian Brugman Berry – I miss feeling full of energy. I used to accomplish so much more than what I accomplish now. Now, I don’t feel like doing much of anything. My ambition to get up to do anything has gotten up & left me!
Billie Jean Doty – I love all y’all—Kathleen-I’m entering that gray emotional zone right now. not many ups downs highs lows, just GRAY…could be because my gland is inflamed…even though doc wouldn’t increase meds because I was in normal range (2.94 TSH is not where my body likes it to be) so I’m suffering through gray spells and hoarseness and a sore throat and the blahs til I see a new doc on Tuesday-wish I could FEEL life happening right now… so happy you can, KATHLEEN–I’ll get there again
Lolly:- Don’t think I can blame my thyroid for this, cus I no longer have it, but if ThyLolly was still around it sure would be causing me some bad symptoms by now, with the shit 2 weeks I have had. Now I feel void of all emotions, when they took you I think they took more than they should have; now I have to rely on a poor substitute. So fuck you Levothyroxine you’re no match for the real thing.
Katie Schwartz – This ingrown cunt hair of a disease can suck my ovaries harder than a hooker sucking off a $300 John. Graves’ strikes again with the gift of endometriosis, thanks so much, sweetieG. I will be spending November/December seeing more doctors for my TED/Graves Opthalmopathy and to choose a course of treatment. I am pissed off, at the expense, the time and the fact that I have to deal with it, to begin with. So, I’m going to feel sorry for myself, though just for a moment and say, IT’S NOT FUCKING, MOTHER FUCKING FAIR. Ah, so relieved I got that off my chest. Thanks…
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5 Responses to “Thyrants Week of November 9th – 15th”
Leave a Reply to Lolly
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Katie :- I’m so glad you got that off your chest better out then in. I’m with you on the Endometriosis and the GO.Hope your gonna get good news on all counts but you know where I am if you need anything just scream. xox
Billie:- hope you can get your FT4 and FT3 tested any doc that doses you by TSH run a fucking mile from they not going to make you feel any better.
Vivian:- I know the feeling so well my get up, go got up and went but fuck knows when I’m gonna get it back. Hows the eyes now? You know were I am if you need me.
Sarina:- Hugs going out to you hope it is all over so and you can start on your road to recovery and feeling better.
Cyndi:- I’ve been knackered this week too, hope next week you got a little more energy.
Lori:- At least you figured it out good for you.
Amy:-For me leg pain, joint pains are a sign that my levels are out of wack usually an indicator, just because they say your labs are normal doesn’t mean they are, they could be low or high normal and not in a good place for you, would love to see your labs, with your reference ranges.
Laura:- If Endoeinsteins shits can’t figure it out, what chance have we got other than to advocate and figure out what is going on with us ourselves.
Kathleen:-so sorry for your loss and we are here any time you want to rant and rave, I’ve had two weeks of shits myself kind of grieving myself but in a different way hugs to you.
Robyn:- Sorry your not feeling too good hope you feel better soon.
Lolly;
I swear it, you are a love machine! Always there for every one of us. Thank you for being you.
xoxoxoxo
PS: I will scream aplenty and thank you!
Amy,
I was plagued for years with hip pain. Wake-up-in-the-middle-of-the-night pain in both hips. Then I developed arthritis like feelings in my wrists and fingers (and it was not arthritis–I took Xrays of myself at work). Turns out when I’m hypo these things flare up. When I went hyper, they went away, when I swung back it flared, and now it’s about 80% reduced. So I’m probably *nearing* regulation for the next 10 minutes, and then it will all change. I found this pain was not affected at all by ibuprofen, etc. so I don’t know what causes it.
Amy and Robyn maybe this will enlighten you about why you get muscle pain and weakness.Hypo or hyper.
http://www.thyroid-info.com/articles/muscle-joint-pain.htm
Katie I got a whole lot of loving to give, Love machine LOL
Thanks for that Lolly, I’ve read similar before. What I don’t understand, though, is why the inflammation cannot be temporarily reduced with an anti-inflammatory??!! Swelling and inflammatory mediators should be reduced with ibuprofen or similar. Puzzling!