Thyrants And Thyraves: With A Twist
This week’s Thyrants and Thyraves come with a twist. The twist is… Providing resources and lending support to our fellow community. As well as reading each other’s rants and raves, let’s share information with each other. If you read a patient’s post and you have a solution, post it in comments. As always, let’s do everything we can for each other, to support each other, and, and, and celebrate each other’s successes.
NHP: , feeling great Katie – Miss you!
MM: My energy. ..I Miss it 🙁 **sigh**
KH: Me too, Mandy!
KT: I had a really good day on Monday. I sent a postcard to my thyroid “Having a great time! GLAD YOU’RE NOT HERE!” Hmmph..my one day vacation ended Tuesday. Where does the energy go when it goes away? Or..where is it when it never arrives in the first place.. Fatigue, thou art mine enemy!
CBS: glandly morning right back at ya darling. I am thankful today that i can blame most anything (aging, my resistance to going to bed at a decent hour for my aging, my failing eyesight, my tired legs, my aching hands from gardening, my menopausal short-term memory issues not to mention that menopausal belly thing) all on my thyroid condition if I wanna!
SC: My baby girl is starting the DIET this weekend and it sucks!!!
NM: , The comment from people ” you have the good cancer”! WHAT???
BOJ: I’m so frustrated. I went to the endocrinologist for the first time today for my Hashimitos. He pretty much just told me to live with it until my blood levels were not in the “normal” range. He did do an adrenal gland test. I guess I’m just going to have to live with my symptoms for now…..Ugh!!
ST: Why is it the doctors act like we don’t know what we are talking about ,when we describe symptoms have never had before they upped the dosage of medicine????Wish there was a metor so we could adjust it ourselves!!!
EB: So true. I’m convinced that I would do best halfway between 88 and 100 mcg. I really think thyroid should come in 5 mcg increments, not 12/13 :~
JJ: yes! I am also frustrated with my doctor. She refuses to do add-back therapy because she thinks I’m responding really well to the Methimazole and only does it in extreme circumstances. But my TSH is 7! ughhhhh
KH: , i’m waiting for lab results. i’m so tired of being tired. and my brain is so screwy. i keep making mistakes at work, i’m going to get fired if i don’t stop screwing things up soon!
TRC: I am new to all this. What does getting your adrenal gland tested do to help & what are add back therapies? Sorry if I sound like an idiot. Trying so hard to learn
AAW: Ok, my first post here-my doc. wont prescribe thyroid if I test normal- but still dragging- any ideas? I feel so tired, yet the doc. doesn’t care.
AA: My new thydoc is an OD who has decided to focus on thyroid and related issues. In three months he has helped me more than all of the other physicians that I have had in 63 years. He listens to me and he talks to me (instead of at me). I get labs done the week before an office visit. During the office visit he hands me my copy of the lab results and we go over them one at a time. In terms of the thyroid tests, he always pays more attention to how I feel than to the numbers on the sheet of paper.
SM: Trying a new doctor today, wish me luck?
VHF: Funny thing…saw my endo today for blood work and check-up. He doesn’t like Armour, but, prescribes it for me anyway…which I thought was nice. He raised my dosage last time. I’ve since been put on Adderall for my ADD symptoms by another doc and I’ve lost 7lbs. He wants to “watch me closely” since he thinks the Armour is to blame. I tried to explain that Adderall can sometimes cause weight loss…..He didn’t know what that was. SERIOUSLY? He had to look it up on Wikipedia while I was in his office. Sigh………I hate doctors.
ML: My GP admits that I know more about Thyroid disease than she does, and know when I tell her my concerns, BUT still sticks to the UK NHS guidelines regarding testing and prescribing meds!!
H:, The good – 2today is a lovely day & I did well at life drawing. – The bad, lost a dear friend to cancer
Aside: Please continue supporting, Dr. Sarah Myhill, to end the witch hunt for this fine doctor in the UK.
Tags: negative rants, positive health accomplishments, positive rants, Thyrants, thyraves, thyroid patient concerns, thyroid patient issues, thyroid patients writing about their disease, Thyroid Symptoms Discussion