Comment Of The Day: June 15, 2010
Today’s Dear Thyroid Letter, song, really, WE ARE THYAMILY by Lollyledge absolutely took our wigs off. And, thanks to Lolly’s thyilliance, we now have a song! Yay. Please sing her tune, log onto the URL above and check out the words to her magnificent song.
Here is an excerpt of why Lolly wrote the song, which we are so grateful for: “I love the new look and feel of Dear thyroid, so many thanks for all the hard work by everyone you truly are remarkable, sticking together and coming back even stronger than ever. I wanted to do something special to mark this occasion, so what better way than with a Lolly thytune for all of us, (it could be our signature tune).”
The comments are hysterical! You have got to read them. We laughed our asses off and enjoyed every single one.
Thylolly – I love you, girl! I think this is perfect for DT signature thytune, yes, yes, yes! I feel the same way too. I bring you all with me wherever I go, my thyamily. Now, how do I get this thytune onto my cell so I can listen to it too? I am printing it now to bring with me as I head out the door, you’ll hear me singing from my car!
I knew you created a new thytune and have been patiently waiting and I must say, it’s even better than I ever imagined!!!
Today’s Thyme For Literary Healing: Fear Of The Unknown was incredibly powerful. We posed a lot of questions regarding each person’s fear related to their disease and their lives. It was an anything goes kind of post.
The courage demonstrated by each patient was mindboggling and beautiful. The support we need to extend, to each other is ever present, especially in this post. Each response is as moving and devastating as the next. We’re all in this together – as Lolly said – we are a thyamily.
Please, please, please give it a read – lend support – share your story.
I have lost my life to a disease that I was told was treatable by taking one little pill every morning for the rest of my life. That was 2 years ago. Fast forward to now. I’m so exhausted; all I can do is lay on the couch all day. Every joint and muscle in my body aches. I sleep 3 hours a night (if I’m lucky). I have severe depression and anxiety. And the worst thing I fear is going bald. I’ve had hair loss for 2 years. I tried many different medications, and doses, to try to make it stop. It just gets worse. I no longer can leave my house. My hair comes out in handfuls every day. I leave a trail of hair everywhere I go. I’m terrified to shower, and I can’t even comb my hair any more. I’m so afraid of going bald; it’s caused me to attempt suicide twice. The depression because of this is unbearable. I was told as soon I went on medication my hair would start to grow back. It never has. I feel I was lied to when I was diagnosed. I was told it was no big deal, and to stop worrying about it, it would all grow back. It’s destroyed my self esteem, my marriage, and my will to live. I’d rather die, then be bald for the rest of my life. I’m scared and alone. I don’t want to hide in my house for the rest of my life. It breaks my heart when I see all the women with thyroid disease who have beautiful hair. I wonder what I did, that was so horrible, to have a fate like this. I’ve cried every day for the last 2 years, and the future scares me to death. The stress from this has taken a huge toll on my body. I get physically ill when I look in the mirror. I don’t know the person looking back at me. It’s just not fair.