DEAR THYROID^TM

In today’s “Flying with Broken Wings: 12 Things You Should Never Say to or About a Thyroid Patient“, Sarah wrote about the vile things people have said about and to thyroid patients, as well as the repercussions of those statements. Here is an excerpt from this week’s post: “Get well soon!/Are you better already? You may mean well when you wish me “get well soon!” and it is indeed a kind sentiment, but sadly it makes me feel as if you are wishing away a common cold. Realistically, I will probably never get well (autoimmune disease is like that), but I may reach a point where my disease becomes tolerable, I no longer suffer tiredness attacks and I can kid myself into thinking that I am “normal”.”

If you missed it, we urge you to catch it.

A wonderful conversation ensued. Many patients shared the things people have said to them over the years, and thyrellas and thyfellas, so sorry. If you haven’t shared your story with Sarah, please do. she’d love to hear from you. Thank you!

Today’s comment…

alisa says:

Thankyou for posting this, this is exactly what I have been receiving… I may have had thyroid problems since a little girl, I was an overweight child and then suddenly lost alot of weight, yo-yoing for a few years.

After the birth of my son – and a few telltale signs during pregnancy, I now know AFTER having him – I was never tested for any thyroid problems even though its supposed to be standard. I had hypoglycaemia and was unconscious for hours because my body didnt want to cope, iron problems – as many pregnant women do – anxiety, and towards then end of my pregnancy very high blood pressure, yet no one tested me! I am lucky my son is perfect because something could have gone wrong!

Then after he was born I wasnt right, I couldnt leave my house without panic attacks, I had all of the thyroid symptoms and was told I had post natal depression.

I was finally diagnosed with Hashimotos after 6 months and demanding blood tests be done! But my TSH is now normal, or slightly hyper again and my doctor tells me im fine, I dont feel fine thanks! Even my own father who is a doctor keeps telling me its all in my head because I refuse to drive because my eyesight is bad and I get too dizzy!

I’m so sick of my family making jokes to where when anything goes wrong or I make comments about anything its followed with ‘..because of my thyroid’ in chorus by my everyone. It’s not an excuse and I dn’t yuse it as one, but I do feel shit!

I don’t think anyone takes thyroid disease or cancer seriously, even worse for disease, as cancer is something people respect more and people assume because I have a disease it can be *cured*.. I myself believed this as it was told to me be doctors, no one told me it was chronic and I would have this forever. But in all the ways that we all came to the relationship with have with our thyroids- or lack there of I want to spread more awareness, I am just unsure how I am able to go about doing this!

I want to print this out and give it to people! :p

We received some fabulous Dear Thyroid letter submissions. If you haven’t submitted one, please do. We have space left in July. We’d love to hear from you. As well as accepting written Dear Thyroid Letters, we also accept video and audio letters. So, let those thyliterary juices flow and get to writing or talking!

If you haven’t created a Dear Thyroid Profile, please do. On the Activity page, we’ll be posting questions throughout the day, every day, and we’ll be having lively discussions with the entire community, which gives us an opportunity to meet new thyroidians. Our activity page is like Twitter meets Facebook without the ads, as our webmaster, Stephen says. It’s awesome. There is no word limit, even better.

Love,

Dear Thyroid

Tags: Comment of the Day, community building, Dear Thyroid, graves disease support, hashimoto's disease support, Health Community, health support community, hyperthyroid support, hypothyroid support, literary community, literary support, thyroid cancer support, thyroid community, thyroid literary community, thyroid support community

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