Comment Of The Day, July 5, 2010
Ah, what a day on Dear Thyroid. Today began with another update/call to action re: UK British Thyroid Health Care. Everyone – all of us – have to get involved. There is strength in numbers. I believe that all thyroid associations and patients across the world need to band together and share the below post with every British citizen they know. Send it out on Twitter, Facebook, Email and ask everyone you know to email their local MP. In the afternoon, we had glandalicious fun and tragedy with Thyme for a Literary Healing: I feel Like a Nerf Ball. Yes, we addressed clumsiness, which, as it turns out, is a lot more common in thyroid patients than many of us realize. Waking up and waking, feels more like bouncing. We are not alone. So many outstanding community members stepped up, to spin their klutz yarn, and it was amazing. We learned so much about our diseases and each other. If you haven’t joined the conversation, please do!
All UK And Multi-National Thyroid Patients And Organizations, Now Hear This! UPDATE, Written by Lolly and Sheila are letters and links to resources about how YOU can get involved in being the change we seek for better thyroid care in the UK. Why should you care, you ask? Because, patients are SUFFERING in the UK, and that is unacceptable. Regardless of the country you reside in, when we need the UK to show up for us, they will. Why? Because we are a THYAMILY. For better or worse. Right now, it’s worse. We took a vow, let’s keep it.
Hi Everybody, you can copy the letter I wrote to my MP by using the following link http://www.tpa-uk.org.uk/letter_to_mp.doc. However, don’t forget to change it where appropriate so it looks like it came from you, rather than me.
I would also urge you all to sign Dr Gordon Skinner’s World Wide Thyroid Register. Dr Skinner is one of the Medical Advisers to Thyroid Patient Advocacy and feels passionate about thyroid patients throughout the world getting together to make things happen, once and for all. We must not allow what is happening to those suffering so unnecessarily to continue. We MUST do
something now. SO PLEASE, TAKE JUST A MOMENT TO SIGN DR SKINNER’S REGISTER HERE http://www.worldthyroidregister.comand please ask your family and friends to sign it also.
And while you are signing this, if you are a sufferer of the symptoms of hypothyroidism who fared badly on levothyroxine (T4) only therapy, yet you got your health back when using a T3 containing product, either synthetic or natural thyroid extract, then please respond to the four short questions (YES or NO)to enable me to create a World Wide Register of Counterexamples to T4 only therapy http://www.tpa-uk.org.uk/register_of_counterexamples.php. This Register will then be sent to all the medical boards, medical schools throughout the world, to show that they are wrong, wrong, and wrong again when the ‘medical masters’ in endocrinology insist that everybody can regain normal health on thyroxine only. All responses will be collated ONLINE. The synopsis and questionnaire has been translated into Swedish, German, French, Dutch, Italian and Danish. You can read more about these in the TPA Spring/Summer Newsletterhttp://www.tpa-uk.org.uk/register_of_counterexamples.php
Enough is enough, it’s time for all of us to take off the kid goves and put on our boxing gloves. As each day passes, I am more and more appalled by the RCP and BTA refusal to acknowledge the medical science available to them that shows how wrong their diagnostic and treatment protocol with T4 only therapy is.
If there are any owners of thyroidm or thyroid related web sites and Internet Thyroid, or thyroid related Support Forums – please will you help in this enormous campaign by pasting the above links onto your web site and/or on to all your members, urging them to sign the appropriate World Wide Registers and also, if they have not already done so, to sign the International Hypothyroid Patient’s Petition for better diagnosis and treatment choice.
Luv – Sheila
Today’s Thyme For Literary Healing: Help, I feel Like A Nerf Ball! speaks for itself.
I didn’t realize that clumsiness was part of the thyroid process but it makes sense. I do start to “tip over” for no apparent reason…..I was always clumsy, but I feel I’ve gotten worse since the hypothyroidism diagnosis.
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