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Join An Offline Thyroid Support Group

Post Published: 29 August 2010
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Category: Dear Thyroid Meet-Ups and Support, offline thyroid support
This post currently has 46 responses. Leave a comment

Offline support – especially for patients with thyroid diseases and thyroid cancers is incredibly powerful. Online support is fantastic. That said, the opportunity to sit across from someone who has walked your mile or a similar mile affords us the opportunity to exhale and speak in shorthand. This is a gift, especially since we closet ourselves or rarely discuss our disease – not all of us, but a high percentage of us do. Please, between the Q & A or stupid questions, or whatever, we become so frustrated, we just shut down. This is un-festive.

Dear Thyroid has been doing meet-ups for a while now. We’ve just gravitated, thanks to Kerri Schwartz, into monthly support groups. Once a month it’s our time to get together with other thyroid patients and let it all hang out, and for additional support.

Please list your city. Please add your name in the hat. Email us with your city, preferred public venue and a few times, so we can connect you with other thyroid patients. There are lots of folks in Chicago, New York, Atlanta, Ohio (Columbus), Tennessee, Los Angeles, and other places. Email us. Below are the three dates for September, October and November.

  1. September 19
  2. October 17
  3. November 21.

What say you? Are you ready for some serious offline support?

Love,

Us

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46 Responses to “Join An Offline Thyroid Support Group”

  1. AnnaMKyle says:

    I’m in the Little Rock area, but don’t have the time or energy to lead a group. Being new to all of this I can be a shoulder to cry on and twisted mind to laugh with, but I don’t have my Theducation yet. 😉
    Anna

    • Elaine says:

      Maybe you and others would like to join fellow brothers and sisters all over the world in a World Thyroid Awareness Coffee Break on Sunday May 20th …2:00 pm your time. We are asking you to join us in spirit and email us a “Toast” if you want one given at this Coffee Break.
      Thyroid Cancer, Graves’ Disease and Thyroid Eye Disease to name a few who will be represented in person. In 2010 Dear Thyroid Joined us in Spirit and we had over 200 people from all over the world. Show your support for Thyroid Awareness. Help us show OUR numbers. tdcoffeebreak@gmail.com
      Elaine Founder of Graves’ Disease Coffee Break

  2. jenna mammina says:

    i am a professional musician, yoga instructor, life coach.

    i also have hashimotos and have every symptom in the book….i take levothyroxine which gives me an immediate headache when i take it. tried synthyroid and everything in between including more alternatives than i care to admit…my doc wants me to have my thyroid removed. my ear nose and throat doc says no. could lose my voice or at least damage…would love to be a part of a meet up. i spend time in michigan and california but travel quite a bit as well. chicago is an option for meet up too…am not very social-not a bar person unless i am performing, too tired to go to most parties……love to connect with others.

    thank you.
    jenna

  3. Catherine says:

    I am in Asheville NC. Where is the closest support group? I am willing to start one here. Is anyone out there close by?

    • Stacey says:

      Catherine,
      I am in Asheville too. I just found out about my thyroid issues this week. I would like to participate in a support group.
      Did you start a group in Asheville?
      Stacey

    • Joyell says:

      I live in Asheville NC as well. I would be very interested in being involved in a support group as well.

    • Stephanie says:

      I am in Asheville as well and am in need of a support group as well! Lets make it happen!

  4. kat_w says:

    Clicking on the link was not working because I’m semi-computer illiterate and couldn’t get the POP mail to set up. I’m very interested in meeting up with people in Atlanta for offline support. I’ve been living with Graves’ Disease for almost five years and have found virtually no support for the way I’ve chosen to pursue treatment. My email is kat@sudstress.com and am open to individual or organized event invitations.

    Thanks!
    🙂 kat

  5. Jnfer says:

    When/where are the meetings in Los Angeles? I would love to attend!

  6. Robin says:

    Newly diagnosed with Hashi’s in Gilbert, Arizona. I’m looking for all the info and support I can find.

    • Beth says:

      Robin, are you still there? It has been a year since your post. I live in Gilbert, Az too!! I have been diagnosed with hashimotos for a couple of years now, would love to connect with you.

  7. Amber says:

    I live in the columbus, OH area and would love to get together with others who can understand my frustration with having Hashimoto’s disease. I just had my first child in August of 2009, and the hormone roller coaster I have been on since has been a nightmare due to the disease.

    • Tina says:

      Amber, are there any face-to-face meet-up thyroid groups here in Columbus, OH? I was just told I have low TSH and a high (56) FSH since my hysterectomy back in Sept. 2011. I was told my thyroid may be “overactive”. I NEED a support group bad because I have been freaking out since my BHRT doctor told me this yesterday!

    • Tina says:

      I am trying to start a Thyroid support group here in Columbus, OH. If you are interested, contact me at Kenyya71@aol.com. Hope to hear from you.

      • claudia savage says:

        im so interested in your group.i moved here from phoenix,and have had thyroid problems for 15 years.they seem to be getting worse here.i know meeting with your group would be a godsend for me.thank you in advance,claudia savage. 614 593 2395

    • charlene johnston says:

      Amber – New to Columbus but not to Graves disease. Did a meetup get established in Columbus?

    • claudia savage says:

      amber,just emailed tina,i hope all of us can find a way to connect.i have the same thing and i know how you feel.its alot better to know you are not alone in this.claudia..savageclaudia42@yahoo.com

  8. Liza says:

    I live in Marin County close to San Francisco and would love to be part of an offline support group. I have been struggling with this illness for 25 years and the support of others who understand would be so helpful.
    Let me know if there is anyone in the area that wants to get something going.
    Thank you.

    • Marge says:

      Liza – I live in Mill Valley. Did you find or start a thyroid support group? I’m interested in starting one if it doesn’t exist.

  9. Kira says:

    Are there any other people from Chicago interested in organizing a meet-up?? I’ve been struggling with Graves’ Disease for 3 years now and would love to swap stories/suggestions with others suffering from thyroid disorders!!

    -Kira

    • Sarahyah says:

      I would love a support group as well. I was diagnosed back in late December. I initially felt better once I was placed on methamazole. My dosage has been switched and it has been a nightmare every since. I’m so tired of feeling tired, having heart palpitations, not sleeping well and not being able to work out like I used to!! This is crazy. Please respond and let me know if you know of a support group here in the Chicagoland area.

      Sarahyah

  10. Michelle says:

    This site was an answer to a prayer. I have been so mpassionate about starting a support group in my area and have no idea how to even start. I am in the Fayetteville/Springdale Arkansas area. I would love some help in starting a support group here.

  11. Tina says:

    Columbus, OH here. Would love to be a part of a Meet-Up group in my area.

  12. Jacki says:

    In NYC and would love to meet up…

    • Leanna says:

      Hi Jacki,
      Im in CT and hope you see this…would love to set something up and am more than willing to go to NYC!!
      Leanna

  13. Elainem says:

    I have GD Coffee Breaks and support meetings on the front range in Colorado. Denver, Colorado Springs, Pueblo and Trinidad. Please contact me if you are in Colorado by any of these cities. tdcoffeebreak@gmail.com
    or lakewoodgraves@yahoo.com

  14. Cheryl says:

    Columbus Ohio here as well! Please tell me there is some form of support group in this area – if not, we need to establish a network. There is clearly a need! I have had Hashimotos for 7 years and I can’t say I’ve felt normal in all that time. It would be profoundly wonderful to connect with people who can understand! Please share any details or interest! -Cheryl

    • Tina says:

      Cheryl, I’ve been trying to find a support group here in Columbus for a few months now. No luck. I’d be willing to start one up here in Columbus, OH. Just need to know who’d be interested? You can contact me at Kenyya71@aol.com. Hope to hear from you and others in Columbus soon!

      • Fabiola says:

        Hi!! I tried to contact you by e-mail but my e-mail was returned. I’m interested in a support group in Columbus, OH. Did you start one? Please contact me! Thanks!!

    • Dar says:

      I’m in the Cbus area as well and so is Tina. I would love to start a group. How do we get this rolling?

  15. Jacki says:

    I wanted to let folks know about this new support group on facebook. It is intended for those of us dealing with a more advanced thyroid cancer or not-so-advanced thyca that no longer responds to RAI (non-avid). Please spread the word:

    https://www.facebook.com/groups/333713883353550/#!/groups/333713883353550/

  16. chuck says:

    Hi please find a location for hypothyroid support group in los angeles, california for me. I have a long term hypothyriod problem. Thank You! Chuck

  17. Pamela Amelang says:

    I need to find a Thyroid Support Group in my area, live on South Shore Massachusetts.

  18. yallolorry says:

    hello lovely people, we have regular support and information meetings for thyroid patients in London. All welcome, we work with the British Thyroid Foundation and are committed to providing reliable, good quality information, top speakers and unconditional support. All dates for future meetings in London and the rest of the UK are on the BTF website and I just did a big write up of the last one on my blog. We love our group, it makes such a difference being able to talk to fellow thyroid patients and our speakers so far have been amazing. Sending Love and Light.

  19. alison says:

    I live near Keene N.H. anyone want to start a group in this area.

  20. joy martin says:

    Has anyone been reading the info on Antabloc and how
    Mary Shomon has endorsed it, more or less….do an easy
    search: NAH Mary Shomon Anatabloc and you will see her info on the front page….thanks….

  21. Larry says:

    Hi. I’m looking for a support group for a good friend who has been dealing with thyroid/ endocrin issues for years. We live in the South Coast area of Mass. Our zip is 02746. Thanks for any help you can provide.

  22. Emily says:

    I’m in Richmond, VA if anyone would like to create a support/meetup group here.

  23. Agi says:

    Have a mix of both Hashimoto and Graves following the birth of my daughter and not sure yet what that even means. Looking for a group in NYC, preferably in Queens or Brooklyn and am happy to lead the effort and propose dates and venues. Anyone interested?

    • Michelle says:

      I would be interested in a NYC based group.

      • Agi says:

        Hi Michelle,

        I just received your reply regarding a NYC support group.

        I live in Astoria with my 1 year old and husband, and come into Manhattan about twice a month. Would you be able to get together in Astoria or Brooklyn?

        So far it’s only us two.

        Thanks
        Agnes

  24. JodiLeanne says:

    I live in Orange County California. I have Hashimoto’s and Graves Disease. My Graves Disease is currently over riding the Hashimoto’s. I am looking for an offline support group in my area.

  25. ryan says:

    I’m also in Marin county, just north of San Fran. I was diagnosed with GD and have since had I-131 and become hypothyroid. Looking to meet up with someone in person to discuss various aspects of thyroid life.

  26. Diane says:

    I live in Brooklyn, New York.
    I do not have a thyroid due to graves disease,received RAI.
    Would love to meetup asap not fussy a casual coffee shop, garden or park!
    Looking forward to joining the group!

  27. kathy says:

    I live in Keyser Wv would like to find a offline group in my area

  28. Dorian says:

    Hi Everyone,

    I’m in Colorado Springs. Hypothyroidism plus menopause, what a wonderful gift!!

    Looking for people, if we are up to it, who might like to walk at the Garden of the Gods.

    Warms wishes and sunny seaons of self.

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