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Thyroid Shouts: Part II

Post Published: 06 September 2010
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Category: Join The Discussion, thyroid support, Thyroid Symptoms Discussion
This post currently has 15 responses. Leave a comment

Today, we’re going to learn a bit more about each other and our respective diseases by shouting, yes SHOUTING – About, to and from our thyroids. Join the discussion and answer a few of these questions.

  1. What have you learned from your thyroid?
  2. What has your thyroid LEARNED from YOU?
  3. What have you gained from your thyroid?
  4. What have you lost because of your thyroid?
  5. What can’t you change about your thyroid condition?
  6. What can you change about your thyroid condition?
  7. What else would you like to SHOUT about, to or from your thyroid?
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15 Responses to “Thyroid Shouts: Part II”

  1. Lolly says:

    1.What have you learned from your thyroid?
    That it isn’t something to mess about with or not take seriously. it maybe small but is s=certainly powerful when it comes down to controlling metabolism.
    2.What has your thyroid LEARNED from YOU?
    That you don’t mess with me either that i had to learn everything I could about you to enable us to try and get some levelling going on.
    3.What have you gained from your thyroid? Knoweldge4 a bit nore wisond amd a terrible temper.
    4.What have you lost because of your thyroid? The thryoid itself
    5.What can’t you change about your thyroid condition? I canlt put my thyroid back so we coud work it out together like we were doing.
    6.What can you change about your thyroid condition? I can try a live healthy, love deeply and not let this thing beat me.
    7.What else would you like to SHOUT about, to or from your thyroid? Life will never be the same without you I have to learn to adapt the best way I can.

  2. yogichic says:

    1. What have you learned from your thyroid? Never to take anything for granted

    2. What has your thyroid LEARNED from YOU? I don’t know, it is gone so I’ll never know

    3. What have you gained from your thyroid? My voice

    4. What have you lost because of your thyroid? My sanity, hopefully temporarily

    5. What can’t you change about your thyroid condition? That I have to take a pill for the REST OF MY LIFE

    6. What can you change about your thyroid condition? Nothing, except to accept it is what it is

    7. What else would you like to SHOUT about, to or from your thyroid? Since you’ve been gone, I APPRECIATE every day of life even more than ever

    ☮ ♥
    Monica

  3. Donna says:

    1. Not to trust doctors. Trust myself.

    2. My thyroid has learned it needs to help take care of me, that I depend on it.

    3. What I’ve gained? About 30-40 lbs. Haha. Seriously though I gained b/c I was hungry constantly, and then I had trouble taking it off….also to maintain my health. Ironically I don’t think I’d be so aware of my Vit D levels, for example, before I got chronically ill.

    4. What have I lost? MOST OF MY HAIR. I’m shouting that. Right now I’m thankful if I have enough for bangs…

    5. What can’t I change about my thyroid? That I need a pill everyday. I don’t mind it, but shortages and the govt etc worry me….also in case of national disaster, we have to wonder how we’d get the med…

    6. What can I change?….I can manage it if/when I’m upfront with my doctor ! I’m proud of that. Also I can change my appearance back to my “inner image” when I put my wig on.

    7. Shout? I’m thankful that at the moment I feel better than I have in 5 YEARS!!!! knock on wood…

    P.S. Monica we have the same answer for #5.

    • Donna says:

      Hi Donna, I worried about the meds in case of a natural disaster, etc. and learned that the post office will be a distribution point when and if the need arises. A parent at my son’s school is a police officer and she told me about the emergency plan. I live in Pittsburgh, PA but they must have similar plans across the country.

  4. HDinOregon says:

    What have you learned from your thyroid?

    — Nothing, silsh, nada, – she just left me!

    What has your thyroid LEARNED from YOU?

    — I’m strong, I’m stubborn, I won’t be defeated!

    What have you gained from your thyroid?

    — about 30 pounds or so

    What have you lost because of your thyroid?

    — sleep and confidence

    What can’t you change about your thyroid condition?

    — I am who I am… no matter what you do/done!

    What can you change about your thyroid condition?

    — not a thing!

    What else would you like to SHOUT about, to or from your thyroid?

    — I can live with it! Even after cancer! – The chronic thyroid condition that is. — Emphasis is on “live” !!!

  5. jillautumn says:

    1.What have you learned from your thyroid?
    I have learned to not take the little things for granted and I am now able to appreciate and enjoy the things I would have normally never noticed.

    2.What has your thyroid LEARNED from YOU?
    I am a strong woman who values my family way too much to give in, despite some bad days.

    3.What have you gained from your thyroid?
    I have gained the knowledge of who truly matters in my life, while many people struggle for years to figure that out.

    4.What have you lost because of your thyroid?
    I have lost the fantasy that I can conquer all on my own, and have become closer to those I have learned to lean on for support.

    5.What can’t you change about your thyroid condition? and…. What can you change about your thyroid condition?
    I can’t change my condition, but I can work on changing my attitude towards my health. Standing up to my doctors to get the care I deserve is a great start.

    7.What else would you like to SHOUT about, to or from your thyroid?

    I AM NOT CRAZY!!!!!!!!!!!!1

  6. Amanda says:

    1. What have you learned from your thyroid?
    Soooo much. Stuff I never wanted to know. I learned I have a thyroid, have learned how important it is for it to be running properly. I have learned that I am stronger than I thought, that I can be as weak as a baby.
    2. What has your thyroid LEARNED from YOU?
    I would guess my thyroid has learned that I want to work together. I am doing what I can to make it feel better. That I need it.
    3. What have you gained from your thyroid?
    Recently I have gained power in knowledge.
    4. What have you lost because of your thyroid?
    Physical weight, physical strength, mental abilities, coping skills, control.
    5. What can’t you change about your thyroid condition?
    That it is chronic. That sucks balls.
    6. What can you change about your thyroid condition?
    I would like to find a nice place to feel mentally, physically and emotionally. I work on that daily.
    7. What else would you like to SHOUT about, to or from your thyroid?
    No shouting, it hurts. I would like to whisper to my thyroid to hang in there, we are on our way to feeling better. I won’t let this take away my life.

  7. Em says:

    1. What have you learned from your thyroid?
    I’m a whole hell of a lot stronger than I give myself credit for.
    2. What has your thyroid LEARNED from YOU?
    Honestly? I think it’s been doing more of the schooling than vice versa at this point.
    3. What have you gained from your thyroid?
    A better sense of who I am NOW versus who I thought I was prior to my thyroid announcing it’s arrival. I have also become more aware of how my body works and (am still learning) what works for my body.
    4. What have you lost because of your thyroid?
    My fear of doctors and being intimidated by them.
    5. What can’t you change about your thyroid condition?
    My thyroid will “die” one day and I’ll be on medication for it the rest of my life.
    6. What can you change about your thyroid condition?
    My attitude toward how I treat myself. I can (and am trying to) support my thyroid the best I can nutritionally, exercise-ally, and just staying the the best frame of mind (easier said than done some days) that is possible.
    7. What else would you like to SHOUT about, to or from your thyroid?
    I’m bigger than my thyroid, I’m stronger than my thyroid and damn it, I’m going to . . . come hell,high water, or crappy docs . . . protect it the best I can so it stays working as long as possible. HARUMPH!

  8. m says:

    What have you learned from your thyroid? That the small butterfly effects so much more than I every gave it credit for. That before you become sick you don’t have a clue as to how much.

    What has your thyroid LEARNED from YOU? I won’t back down.

    What have you gained from your thyroid? Weight and knowledge.

    What have you lost because of your thyroid? For a while, I lost my former self. The girl who could remember everything, had a figure,a miscarriage, etc.

    What can’t you change about your thyroid condition? I can’t make it go away. There is no magic pill that makes it all better. It’s a constant battle.

    What can you change about your thyroid condition? Educating others, reading and wrapping my head around all things that pertain to my condition, advocating for others, Etc. Being armed with information prior to stepping into the Dr’s office- knowledge is power.

    What else would you like to SHOUT about, to or from your thyroid-HEAR ME ROAR!

  9. SharonM says:

    1. What have you learned from your Thyroid?
    That it exists & how insanely important it is to making me feel well or unwell (depending on how much it is being bullied & pushed around by Graves)

    2.What has your Thyroid learned from you?
    ? ?

    3.What have you gained from your Thyroid?
    No muscle, fat, hair loss – blah blah blah
    Well once upon a time I suppose I gained good health & decent quality of life. Not anymore – but that isn’t my thyroids fault, it’s as much a victim of Graves as I am.

    4.What you lost because of your thyroid?
    Hmmm – tricky because it would be all too easy to blame Graves on my “joyful” personality & erm..imperfections. I’m not going to sit here & pretend that if I didn’t have Graves then I’d be a walk in the park & a wonderful human being because that would be a load of crap. I’m a royal pain in the ass on the best of days. I do believe though that I endured Graves disease for a very long time (years)before my symptoms were severe enough for me to seek help. I thought I was getting older & that this was just how things were – we get old & feel more & more crap with every passing day.
    So it’s difficult for me to pin point when I became truly ill – thus hard for me to blame Graves (or my Thyroid) for losses (like jobs, relationships, etc).

    5. What can’t you change about your thyroid condition?
    Well, Graves is an autoimmune disease & apparently there is no “cure” so there is nothing I can do. I can merely seek help for symptoms so I feel helpless.

    6. What can you change about your thyroid condition?
    Nothing really.
    If this second bout of Graves does not result in remission then I want my thyroid surgically removed from my body. This pisses me off because I don’t have cancer, it is a seemingly perfectly healthy thyroid that is being attacked by this dumb disease. I just wish we could find a treatment for the cause & not the symptoms.

    —————————————————

    This is actually my first entry on dearthyroid.org. I’m a new member with Graves – first diagnosed in ’08 – was on meds for a little over a year & then went into remission (maybe a bit hypo but nothing I felt I needed treatment for). After almost a year strong Graves symptoms kicked in again (about a month ago) & now I’m back on Methimazole & Propranolol. Doc says I have 3 choices, surgery, RAI or if possible a low dose of meds for life if it’s manageable. Crappy choices.

    & by the way – why “GRAVES”?? I mean could it be called a more morose name – REALLY? I realise the Dr’s name was Graves but couldn’t he have given the condition a less depressing name? Graves, graves … .ugh. This rant may have something to do with my watching Six Feet Under all over again…

  10. Scott Rose says:

    My thyroid has taught be to be succinct.

    For example:

    Dear Thyroid:

    Fuck you.

    Sincerely,

    Scott Rose

  11. katie says:

    Oh, I am hoppin’ fuckin’ mad. Do you know that when you search for statistics on how many people have an invisible illness, you get, of course, INVISIBLE ILLNESS WEEK. Fine.The list is HUGE, of resources and organizations dedicated to — drum roll please — invisible illness.

    But. They don’t even list THYROID DISEASE OR THYROID CANCER AS AN INVISIBLE ILLNESS. I can’t believe that we are invisible to INVISIBLE FRIGGIN ILLNESS. I AM COMBING THE SITE and hope with everything inside of me that I find some reference to thyroid disease/cancer. Livid doesn’t begin to cut it, yo.

    Fucking balls to the wall pissed off.

    Keep sending in those acrostic poems for invisible illness. Every day next week, we are going to prove to the world that we are NOT, NOT, NOT INVISIBLE. http://dearthyroid.org/invisible-illness-week/ (submissions(at)dearthyroid(dot)org

    Dear Thyroid, at this point, I feel bad for you, you’re a damn step-child.

    It’s going to take moving mountains to make the medical professionals and others to realize how serious our diseases/cancers are.

    As you were.
    Katie

  12. AnnaMKyle says:

    1.What have you learned from your thyroid?
    That one tiny little part in my complicated body can turn my entire world upside down.

    2.What has your thyroid LEARNED from YOU?
    That if it’s going to argue with me, I’ll fight back!

    3.What have you gained from your thyroid?
    A crazy endo who’s obsessed with pugs.

    4.What have you lost because of your thyroid?
    Many hours spent sleeping that should have been spent with my sons.

    5.What can’t you change about your thyroid condition?
    It’s existence.

    6.What can you change about your thyroid condition?
    My attitude toward it.

    7.What else would you like to SHOUT about, to or from your thyroid?
    Dear Thyroid,
    I’ve never purposely done anything to hurt you. Why are you putting me through this? Every joint and muscle in my body is screaming in pain. These migraines are unbearable. All I want to do is sleep, but my family needs me. How can one tiny little gland make me so miserable? I almost hope these pills don’t work so the doc will just cut you out and I can be done with you. Yeah, pills are not a perfect replacement, but at least they are more predictable than you have ever been. And just so you know, if you’ve got cancer in there I’m going to be REALLY PISSED!
    Sincerely aggrivated,
    Anna

  13. Donna says:

    I’m with Scott. Fuck you thyroid.

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