Circling the Drain of Change
“And you stood tall now you will fall
Don’t break the spell of a life spent trying to do well
And you stood tall now you will fall
Don’t break the spell of a life spent trying to do well” — Lullaby by Sia
Lesson #1: Disease changes our perception of ourselves and our relationships with others
Lesson #2: Some people are incapable of accepting that we’re healthy, even with thyroid disease or thyroid cancer
Lesson #3: It is human nature to project onto others
Lesson #4: Many of us harbor unrelenting, behemoth guilt, shame and inner conflict, about how our disease has affected ourselves and our family, and friends.
Lesson #5: Thyroid disease and thyroid cancer is grossly misunderstood and is, for lack of a better word, the step-child of the endocrine system. Moreover, our diseases are unsexy.
Lesson #6: Reinvention. How?
Lesson #7: Thymentia dominates our conversations with ourselves and others.
What lesson(s) would you add to the list?
When you feel like you’re breaking free of the cocoon, so the butterfly (bad metaphor, I know), can spread it’s wings and migrate or fly to a new location, what holds us back?
We expect so much of ourselves and our families, which is unfair to everyone. We’re overly sensitive. Some of us are guilt junkies, while others are simply irate and incapable of seeing our diseases through the eyes of others.
Let’s boil it down even more. Change. We need change, within ourselves, our relationships and the medical community. Lack of awareness and education is winning the war on our diseases. The onus is on us to revolutionize education and awareness. Enter Dear Thyroid; a brand rooted in the fundamental belief that each of our Dear Thyroid Letters and other literary works paired with iconic images of healthy, beautiful women and men will in part, achieve this.
If we want a revolution, we have to do more. Write more. Connect with each other, and share our letters with as many non-thyroid people as we can. I say this because if we don’t, we can’t invoke the change we seek. The medical community is reaching out to us. They are listening to what we have to say. Some folks want to guest post, while others want an opportunity to learn more about us, to be better practitioners and healers. Families are emailing in record numbers to express their unmitigated pain that they’ve endured, yet fearful of saying as much. We’re championing their effort and hoping that some will share their stories.
Do more. Write more. Approach awareness fearlessly. Know that while there are some schmucks out there, there are also gems. Doctors are facing the same issues with insurance that we are as patients. Moreover, we need to educate the masses. Together, we can.
This is my call to action, my missive asking for MORE, MORE, MORE involvement, sharing and educating. Every single one of us IS making a difference. Our words are being heard. Take that in for a minute.
Tags: bridging the gap of awareness and education for thyroid diseases and cancers, circling the drain of change, feeling misunderstood when managing chronic illness, invoking change for thyroid patients, learning how to change, learning how to reinvent ourselves, learning to support our family, learning to support ourselves, lessons learned by having disease, seeking familial support with thyroid cancer