Dear Thyroid^TM

Today’s post was a song (in thyroid version)  called “Crazy“, written by Robyn. If you haven’t read it, please check it out. Robyn shared her experiences of medication, and issues surrounding T4, in verse. Her song was clever, honest and very true.

It seems that in order to achieve wellness, in so many ways, we use ourselves as guinea pigs, to some degree or another, under a doctor’s supervision, of course, in the hopes that we reclaim some small piece of ourselves.

Today’s Comment of the Day encapsulated, so poignantly, the crux of Robyn’s post with a funny twist.

Thank you, Anonthp for your wonderful comment and thank you to everyone for bringing our community that much closer by sharing more of yourselves with each other.

Anonthp says:

March 12, 2010 at 12:16 pm (Edit)

Robyn,

LOVE the song. I sound just like Patsi when I sing it! hehe! Unfortunately I think we all start out thinking (because our doctor makes it sound so eeassyy) that all we have to do is take that little pill and we will be “cured” and when that doesn’t work, we start to look for something that will…

Thanks for a great way of putting that into thylyrics and also ending our week in some fun.

(Written by Robyn Davis Hahn, Hashimoto’s Patient)

I’m crazy for feelin’ so lonely, I’m crazy, crazy for feelin’ so blue……

I knew, you’d make T4 as long as you wanted, And then someday, you’d stop and bring troubles anew.

Worry, why do I let myself worry? Wonderin’, what in the world did I do?

Oh, crazy, for thinkin’ that Synthroid could heal you….. I’m crazy for tryin’ and crazy for cryin’ And I’m crazy for lovin’ you.

Crazy, for thinkin’ that Armour could heal you, I’m crazy for tryin’, and crazy for cryin’ And I’m crazy for lovin’ you…..

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Our Dear Thyroid Community grows stronger every day. Much like a family; we laugh, cry, debate, express our anger and much more. That, among other things, brings us closer and demonstrates our ability to connect with each other, and share our stories via letters, comments, rants and photos. The struggles we deal with day in and day out, including the impact our respective disorders has on our families, is what bonds us.

We have decided to launch “Comment of the Day”. Every comment is an expression of what each of our thyamily goes through and is important. We learn from each other’s comments and stories. We feel supported in our darkest moments and we laugh our asses off knowing that we aren’t alone. Someone out there in the ether, er, thyether reads between the lines and feels us deeply. That said, in the spirit of community, we are choosing one comment a day to post as an individual blog post.

Today’s comment was written by Sarah Broers regarding today’s letter “An Infinite Number of Monkeys Typing At an Infinite Number of Typewriters Might Not Produce Shakespeare, But They’ll Still Be Ahead of the Insurance Companies and Pharmacies“.

The discussion about Sharen’s letter dealt with issues thyroid patients face daily with respect to pharmacies, prescriptions and insurance companies. In fact, in many ways, this conversation was a continuation of Wednesday’s column “Going For The Throat: Confessions of a Health Insurance Neophyte“, written by our EIC/Health Care, Robyn Davis Hahn.

Sarah, thank you for your comment and thank you, Dear Thyroid community for bringing our community closer together, and for allowing us to learn more about you and about ourselves.

Sara Broers says:

March 11, 2010 at 1:32 pm

Our insurance companies should NOT determine what types of medications we receive. This should be between us (the patient) and our physicians. I just don’t get it! Keep fighting~thanks for standing up for yourself and the rest of us!

(Written by Sharen, Thyroid Patient)

Dear Thyroid,

Happy New Year. You and I have finally WON! Well, let’s say we’ve won the first step, and that is finally getting the insurance company to open their eyes. Not sure if it was my patient call, or the medical bills or the doctor’s office finally calling to let them know that the generics are not accepted in my body. Anyway, I received a call today to let me know that they are letting me take the correct medication for one year.

Dear Thyroid,

Well, two days have passed so I called the pharmacy, and—yep!—they are saying that the insurance company will not process the medication. So I called the insurance company back, and they are stating that the pharmacy did not call them. So, they will call the pharmacy back, then me.

Dear Thyroid,

Another day has passed and so far not a call from anyone. The pharmacy states that the insurance company didn’t call, so I will call the insurance company. Called the insurance company and the lady suggested that I stay on line while she talks with the pharmacy. She called them, then she talked with me, stating that the pharmacy was lying and that the medication will go through at a certain dosage only per pill.

Dear Thyroid,

Well, another day has gone by and I am still fighting with the pharmacy and now the doctor’s office. How hard is it to understand that the pill can only be 25, not 50! Finally, after 4 HOURS, I’m able to pick up the right dosage and the insurance company is paying.

Dear Thyroid!

Oh Good Grief! I stopped at the pharmacy and they have not even started to work on the prescription. Then they state they do not have the full amount, that I will have to come back sometime next week. They also stated that none of this was their fault.

Dear Thyroid,

I am back on the right medication, and I am feeling better. The thyfog is less and the thyblindness has eased as well. The thought of seeing the doctor in March is not high on my list. I have kept record of all the running around that has been done due to her people and herself and I feel she needs to know that this is not the way people should be taken care of.

But I won, ONE battle, and maybe because of this victory, others will be able to fight and win as well.

So, OK Thyroid! Wakee….Wakeee….

Sharen

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