Dear Thyroid, What – IS – WRONG – WITH – YOU?!
Dear Thyroid, Why can’t I find any Standardize Healthcare to abolish you?!
Why do I have to advocate my care, yet am expected to pay a Dr? Why do Docs act like they understand, when your gut knows better? Why do I walk out of the appointment feeling more frustrated? It’s like pulling teeth. I’ve never seen a brochure in any Dr. office with thyroid info. My Doctor said I shouldn’t believe what I read on the internet. Yet it was the Net that aided me in my descision to get checked out. Why are there many other symptoms that are only occasionally mentioned? I live in America, it’s 2012, so why all the secrets? Mary Shomon is a HUGE GIFT and I want to thank her for all that she has exposed. Thank-you MARY FROM THE BOTTOM OF MY HEART!
My brief story:
I had been feeling poorly for sometime with increasing symptoms over a period of several years. Under suspision after researching my symptoms online, my best friend and myself made an initial appointment with his GP with a request to check my Thyroid. They drew blood & a nurse called me the next day with the results. She told me I had an inactive thyroid & needed my pharmacy’s number to call my prescription in. The only instructions were to set up an appointment to check my levels in 6 weeks. Their bedside manner made me cringe!
That was in June of 2011. Knowing I would be returning, I did more research. Upon my 2nd appointment, I was armed with questions. They drew blood once again. I was having stomach problems. She sent me to a Gastroenterologist. Llong story short, I have a hiatial hernia. Followed by another call regarding my blood levels that led to an increase of my dosage.
Upon a 3rd appointment for levels, ironically my levels stayed the same despite feeling like crap. She recommeneded I go see a physchiatrist for depression. I was pissed. What do they expect… she too would feel depressed if she was in this situation. They don’t get it!
In between these appointments, I was referred to a chiropractor? I found this odd, but must say that the extensive questions, along with giving him permission to have the results of my blood work from the GP to save me money, plus he spent an hour with me during our initial appointment. He was the one that diagnosed me with Hasimoto’s. He wanted me to follow a fruit, vegtable & protein diet only, along with supplements. I never started the diet for the fact that these supplements, as he warned me may not make me very happy if I didn’t follow it precisely. I feared that, but I recently have been considering starting this diet if all else fails.
I decided to go see an endocrinologist because I was getting nowhere fast. Finally after a long wait list, I saw the endocrinologist at the end of March, 2012. She seemed in tune with my initial appointment. The doc ordered blood work and an ultrasound of my throat. The results, 3 weeks later, confirmed the Hasimoto’s and she wanted me to take the name brand Synthroid & increased the dose. I have 2 small nodules that I am expected to not worry about, her words. She kept nodding and telling me “I Know,” for every concern I voiced…. “I get it.” You hear these stories daily, but you really don’t get it. I know this, you don’t walk in my shoes. You hand me my prescription, smile in a happy mood & leave the room. You are beautiful, smart & happy, I get that, but I came for help and walked out feeling like a fly on the wall. I want to walk out feeling like you do. You rush me because you were 45 minutes late. I watched you walk in, you had to be buzzed in. I feel like I’m throwing money out the window, now my prescription costs are $85 for 3 months opposed to the $10 that I was paying. A drug addict has more options for help than someone with Thyroid Diesease, that we didn’t bring on ouselves, this simply makes no sense at all?
This thyroid crap is a viscous circle of evil. I can’t work because I am that ill, which means I have no health insurance, which leads to depression. I am running out of money. I used to thrive on being busy. People said I worked out too much. I was in great shape. I miss me! I miss my energy! To me this is like having a cancer with foggy options from practitioners. The choices that you make will hopefully make you feel better.
I have a new goal & mission. I want to challenge other Thyroid sufferers to start a standard list of ”What to expect and the steps to take when diagnosed with any type of Thyroid condition”.
A blood level chart will be listed, too. Most people don’t know what the norm is. I hope that Doctors will help in this list. I hope that celebraties will follow suit. ***Please see below
I for one never knew the seriousness of a thyroid condition and I can speak for thousands of others. I want brochures in doctors offices with this info. I don’t want to play guessing games anymore.I don’t want anyone guessing and waiting anymore. The info is there yet vague. We need more precise detail on how to manage our thyroid health.
Along with the usual symtoms of fatigue, weight gain, foggy brain, hair loss, dry skin,brittle nails, aches & pains, etc., these pamphlet’s should include helpful advice regarding the following.
Diet- dairy free – gluten free?
Amor Vie Therapy – Iodine Intake Measurements
Has this affected your teeth, eyesight, your learning abilities?
I probably missed many topics, inputs are welcomed.
Communication is key in our health care to feel well again. I’m tired of reading so many different opinions amongst our health care practioners.I’m tired of them not joining forces per say to abolish or to help heal all who are suffering.
It is nothing but a confusing controversy to a foggy brain thyroid patient.
Thanks for taking the time to read!
Resources from Mary Shomon, Coping with Thyroid Disease, Hashimoto’s vs Hypothyroidism, Living Well with Graves’ Disease & Hyperthyroidism, Thyroid Blood Tests, Getting Tested and Diagnosed and Key Thyroid Function Tests Lab Values and Interpretation.