Comments on: Endocriminologist, Yes! Will I Thyvive? YES!

By: dearthyroid

dearthyroid — Wed, 09 Dec 2009 13:53:13 +0000

Kathy, we can all agree — what you’ve written here and what you experienced is absolutely sickening and infuriating. People like that deserve to lose their license. What the fuck was she thinking? You know what was on her mind — money money money. I have a knot in my stomach FOR you. Simply cannot imagine the rage, anger, and sadness coursing through your body at that moment.

Thanks everyone for supporting Kathy! She deserves it so much!

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By: Zari

Zari — Sun, 06 Dec 2009 05:30:59 +0000

So she said “You are hypothyroid but you are fine” I don’t quite understand that. You can be one or the other, not both…….did she tell you what your numbers actually were? The right number for one person may not be the right number for someone else.

I complained about all this to my endo also and she suggested vitamin D, also did a blood test for my vitamin D and said it was a bit low. I take it October thru May, not in the summer. She also suggested I experiment with my synthroid in small doses, which I’ve done.

I have had many of the same symptoms you have had although currently they are mostly okay. Weight loss was a bitch but I somehow did it.

Glad to hear something is working. Who knows, maybe the endo was right, your thryoid is okay, and there is something else wrong. At least that’s what the success of the supplements might indicate.

Zari

By: Lynne

Lynne — Sat, 05 Dec 2009 15:32:15 +0000

Dear Kathy,
I am so sorry you had to go through all that with the endo. unfortunately so many of us go through the same thing with these so called specialists.
In the end I ditched my endo entirely and now my gp deals with me…. I told him what I learned and he checked it out then we agreed to try natural thyroid.
Recently with the problems getting Armour I had a change to Nature-Throid, it just did not work for me. My pharmacist did loads of searching about and found Erfa thyroid available from Canada. Being in the UK we have real problems getting any natural thyroid hormones, but along with my gp, she managed to get me the Erfa. I am having to adjust my dose again but I am not nearly as bad as I used to be before the natural replacement.
I also take a lot of supplements because my adrenal supply was virtually non existant. Hold in there girl and all the best. x

By: Robyn

Robyn — Sat, 05 Dec 2009 14:49:23 +0000

Kathy,
How “medical professionals” maintain that label when they act anything BUT professional is beyond me.
I wish we could somehow “vote with our feet”–if these awful people had no patients then they would get better–just like any other service industry.
I’m very sorry!

By: lori

lori — Sat, 05 Dec 2009 03:53:06 +0000

Kathy, so sorry you had to endure such ignorance. We are paying for them to provide a service. What makes them think they can treat us like we are not even human. It’s a disgrace.

I am so proud of you Kathy. I know how disparing it can be. I cannot tolerate any of those meds either. I don’t know why they don’t recognize it’s related to the thyroid. I’m sure they hear this all the time. I even went to an allergist/immunololgist about all my intolerances/allergies, and what a waste of time of that was.

I hope you are still improving.
Lori
XOX

By: quin browne

quin browne — Sat, 05 Dec 2009 01:36:08 +0000

whoa.

and i thought my endo who saw me once in two years sucked.

i used melatonin for years, finally getting to the point where it didn’t work anymore…so, i have gone to otc sleep aids, and that is good enough for me.

be strong, and, i don’t agree with bee…there are some who do care. my new endo is a complete doll, and is doing workups and scans and cares… i can’t say enough good things about her.

By: amy

amy — Sat, 05 Dec 2009 01:35:54 +0000

Kathy, so sorry for your crappy experience! I am glad that you are taking good vits and feeling better! I have personally never been to an endo. I am blessed with a natural dr who specializes in thyroid(and a few other things). But before her I did see a kinda crappy n dr. Good job researching! Sometimes we have to take matters into our own hand which sucks because the dr’s are supposed to be there for us! Keep looking and you will find a good dr. And hopefully soon! Amy

By: Bee

Bee — Sat, 05 Dec 2009 00:48:52 +0000

oH, Kathy—for I minute I thought I’d written that letter and then panicked when I couldn’t remember ever writing it–and that’s bcuz I didn’t write it— but i know all this crap way too well…so sorry you ,and me, and everyone else has gone thru this crap-i’m beginning to think that a lot of endos became endos bcuz they didn’t qualify for any other specialty. The predominant requirement for specializing in endocrinology seems to be
a shitty personality with a strong propensity to be rude and unfeeling to your patients-unless you’re diabetic and then they love you.

By: Eyece

Eyece — Fri, 04 Dec 2009 22:55:06 +0000

As to the vitamin D toxicity thing, I want to point out two things.

The first, and most important, is this: http://www.vitamindcouncil.org/vitaminDToxicity.shtml

The second is that my endocrinologist, when I asked what a good dose to take was, said that the maximum (presciption) dose available was something like 50,000 IU per capsule. She said that 4,000 IU was a good daily dose for me to recover stores. She said that lower doses work just fine too, it just takes longer to refill the stores that your body needs to use.

The big problem with high doses of Cholecalciferol (as stated in the link I’ve posted – under “Hypersensitivity, not toxicity”) is that it can lead to problems with calcium regulation.