Comments on: HashiKissMyAssOtos Disease http://dearthyroid.org/hashi-kiss-my-ass-otos-disease/ We Are At The Beginning Of Change... Wed, 08 Feb 2012 00:01:23 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: paige http://dearthyroid.org/hashi-kiss-my-ass-otos-disease/comment-page-1/#comment-49002 paige Sun, 04 Dec 2011 23:11:12 +0000 http://dearthyroid.org/?p=2477#comment-49002 hello, i know this is like, 2 years too late.. my name is paige, i am 15 years old, i have hashimotos disease. i am in year 11 and just starting my GCSE's . i find it hard to be myself because i dont know who that is anymore. my weight has gone up massivly, my moods steep so low that i find it hard to even put up with me myself, i know how you felt luci. i feel as though im going to be alone for ever, trapped in a world of mixed emotions,. my bpyfriend forgets my moods so when i seem to be horroble he takes it to heart, but i just cant help it. i feel so alone, knowing i might never have kids scares me. i cant believe somthing so small could ruin so many years of my life. hello, i know this is like, 2 years too late..
my name is paige, i am 15 years old, i have hashimotos disease. i am in year 11 and just starting my GCSE’s . i find it hard to be myself because i dont know who that is anymore. my weight has gone up massivly, my moods steep so low that i find it hard to even put up with me myself, i know how you felt luci. i feel as though im going to be alone for ever, trapped in a world of mixed emotions,. my bpyfriend forgets my moods so when i seem to be horroble he takes it to heart, but i just cant help it. i feel so alone, knowing i might never have kids scares me. i cant believe somthing so small could ruin so many years of my life.

]]> By: Luci http://dearthyroid.org/hashi-kiss-my-ass-otos-disease/comment-page-1/#comment-3808 Luci Fri, 20 Nov 2009 02:17:31 +0000 http://dearthyroid.org/?p=2477#comment-3808 I'm so sorry I'm late for this letter being published. It's impossible for me to reply to all your comments, but it's important to me that you all know I read every single one of them and they all mean so much to me. I choked up when I saw how many comments there are and, reading them, I've been crying all the way through. Like I mentioned in the letter, I don't really get much support from the people around me, and it's amazing and overwhelming to get so much support from all of you. Thank you all for your wonderful comments! I've been trying to cut down on internet lately because I feel like it often fuels my depression... But I'd really like to be more active in this community...you're all amazing! :) I haven't tried going gluten-free. I have always loved food, and since becoming sick have regarded it as one of the rare pleasures I had left, the highlight of my day. I know that's sad, but you've gotta grasp onto something... I just couldn't bear the thought of denying myself that, not after life had denied me so much. Especially since I was feeling quite pessimistic about the possible benefits :( I did look into testing but all the info I could find was so frustrating and confusing (like everything else about being sick, it seems) - basically it said that you could still very well be gluten-intolerant even if the test says you're not... And testing for gluten intolerance is really hard to come by where I live =( I have been thinking about it more intensely recently, though, especially since my body has been feeling worse, despite my mood being much better overall in the last couple of months... Vitamin D I have checked and tried supplementing, but like just about anything else I try, it didn't seem to make a difference :( I don't know...I'm sure there might have been something I was doing wrong...this is all just so complicated and overwhelming I can barely even find the strength to TRY to cope. But you all know how that feels already. I understand what those of you who have mentioned how so many people get shortchanged for various reasons, even at a young age, mean about accepting our life path and making the best of it. I have started allowing myself to dream of a life after stabilizing my thyroid. I know it will never be like before, and I don't expect my life to be like my friend's. It is what it is, and I don't ask for much. I just dream of going through whole days with my mind and heart at peace, without constantly worrying about something or the other, struggling not to fall asleep, or fighting the urge to cry. I really do think I'll get there and achieve all that. So no, I'm not giving up. Your comments are even more motivation not to =) Reading them has really given me hope and strength! Lots of love to you all! I’m so sorry I’m late for this letter being published. It’s impossible for me to reply to all your comments, but it’s important to me that you all know I read every single one of them and they all mean so much to me.

I choked up when I saw how many comments there are and, reading them, I’ve been crying all the way through. Like I mentioned in the letter, I don’t really get much support from the people around me, and it’s amazing and overwhelming to get so much support from all of you. Thank you all for your wonderful comments! I’ve been trying to cut down on internet lately because I feel like it often fuels my depression… But I’d really like to be more active in this community…you’re all amazing! :)

I haven’t tried going gluten-free. I have always loved food, and since becoming sick have regarded it as one of the rare pleasures I had left, the highlight of my day. I know that’s sad, but you’ve gotta grasp onto something…
I just couldn’t bear the thought of denying myself that, not after life had denied me so much. Especially since I was feeling quite pessimistic about the possible benefits :( I did look into testing but all the info I could find was so frustrating and confusing (like everything else about being sick, it seems) – basically it said that you could still very well be gluten-intolerant even if the test says you’re not… And testing for gluten intolerance is really hard to come by where I live =( I have been thinking about it more intensely recently, though, especially since my body has been feeling worse, despite my mood being much better overall in the last couple of months…

Vitamin D I have checked and tried supplementing, but like just about anything else I try, it didn’t seem to make a difference :( I don’t know…I’m sure there might have been something I was doing wrong…this is all just so complicated and overwhelming I can barely even find the strength to TRY to cope. But you all know how that feels already.

I understand what those of you who have mentioned how so many people get shortchanged for various reasons, even at a young age, mean about accepting our life path and making the best of it. I have started allowing myself to dream of a life after stabilizing my thyroid. I know it will never be like before, and I don’t expect my life to be like my friend’s. It is what it is, and I don’t ask for much. I just dream of going through whole days with my mind and heart at peace, without constantly worrying about something or the other, struggling not to fall asleep, or fighting the urge to cry. I really do think I’ll get there and achieve all that.

So no, I’m not giving up. Your comments are even more motivation not to =) Reading them has really given me hope and strength! Lots of love to you all!

]]> By: dearthyroid http://dearthyroid.org/hashi-kiss-my-ass-otos-disease/comment-page-1/#comment-3777 dearthyroid Wed, 18 Nov 2009 14:01:54 +0000 http://dearthyroid.org/?p=2477#comment-3777 Thanks Zari. Great words. :) Thanks Zari. Great words. :)

]]> By: dearthyroid http://dearthyroid.org/hashi-kiss-my-ass-otos-disease/comment-page-1/#comment-3776 dearthyroid Wed, 18 Nov 2009 14:01:08 +0000 http://dearthyroid.org/?p=2477#comment-3776 I'm loving all the support all you lovely ladies are giving Luci. It's so touching to see you all go out of your way to offer advice and encouragement. Dealing with this disease in your teens has got to be so tough, especially when none of the people around you are sick. I’m loving all the support all you lovely ladies are giving Luci. It’s so touching to see you all go out of your way to offer advice and encouragement. Dealing with this disease in your teens has got to be so tough, especially when none of the people around you are sick.

]]> By: dearthyroid http://dearthyroid.org/hashi-kiss-my-ass-otos-disease/comment-page-1/#comment-3775 dearthyroid Wed, 18 Nov 2009 13:57:21 +0000 http://dearthyroid.org/?p=2477#comment-3775 Jess, your suggestions are the best. :) Thank you for taking the time to support Luci. She's got big things in store for her future, we just know it. A disease can't stop her. It can only make things a bit more challenging. But clearly she's a fighter. Jess, your suggestions are the best. :) Thank you for taking the time to support Luci. She’s got big things in store for her future, we just know it. A disease can’t stop her. It can only make things a bit more challenging. But clearly she’s a fighter.

]]> By: dearthyroid http://dearthyroid.org/hashi-kiss-my-ass-otos-disease/comment-page-1/#comment-3774 dearthyroid Wed, 18 Nov 2009 13:55:58 +0000 http://dearthyroid.org/?p=2477#comment-3774 Thanks for your support Lolly. Good words of advice. We love our thymmunity! Thanks for your support Lolly. Good words of advice. We love our thymmunity!

]]> By: dearthyroid http://dearthyroid.org/hashi-kiss-my-ass-otos-disease/comment-page-1/#comment-3771 dearthyroid Wed, 18 Nov 2009 13:52:40 +0000 http://dearthyroid.org/?p=2477#comment-3771 Good thinking Jody. You're one smart lady. Thank you for suggesting that. Luci, I (Liz) would totally encourage you to try a gluten-free diet and see what happens. It has helped so many of us so much. I have Hashimoto's too and it's completely changed so many symptoms for me. Good thinking Jody. You’re one smart lady. Thank you for suggesting that. Luci, I (Liz) would totally encourage you to try a gluten-free diet and see what happens. It has helped so many of us so much. I have Hashimoto’s too and it’s completely changed so many symptoms for me.

]]> By: dearthyroid http://dearthyroid.org/hashi-kiss-my-ass-otos-disease/comment-page-1/#comment-3770 dearthyroid Wed, 18 Nov 2009 13:51:00 +0000 http://dearthyroid.org/?p=2477#comment-3770 So true Robyn!! -- she IS courageous and she is strong! We all have to forge onward... whether we like it or not... it's our only means of survival against the horrors. So true Robyn!! — she IS courageous and she is strong! We all have to forge onward… whether we like it or not… it’s our only means of survival against the horrors.

]]> By: Kathy http://dearthyroid.org/hashi-kiss-my-ass-otos-disease/comment-page-1/#comment-3766 Kathy Wed, 18 Nov 2009 11:11:22 +0000 http://dearthyroid.org/?p=2477#comment-3766 Luci, My favorite part of your letter, the very end of your bio "I still haven't given up", and that is what you have to stick with..Giving up is simply NOT an option. Do you have a good rapport with your doctor? That is the hardest part of the struggle for me, feeling like I have to handle things alone. That is why I come here, to listen, talk, cry, share, give and get support. Here, we feel your pain, and when it's time to laugh about the stupid things that happen, we do that too. It isn't going to be an easy road for you, but you have courageously come thru 4 years of fighting, and I admire your guts and spunk. If you can, I suggest finding one thing a day that is not related to the disease, to make you smile..start with just one thing. See if for 15 minutes you can do something to take yourself away. I know that even as few as 15 minutes can seem like a lot for me some days, but, you can look back and think..hey, I made it through those 15 minutes. When your family and friends close by won't listen and support you, come here, because WE will. Keep writing!! It does help to get it all out. When I write and then a letter is published and I look back, I wonder, where the hell was I when I wrote that? Writing is healing. Thanks for sharing yourself with us. We'll be here to listen some more! Luci, My favorite part of your letter, the very end of your bio “I still haven’t given up”, and that is what you have to stick with..Giving up is simply NOT an option. Do you have a good rapport with your doctor? That is the hardest part of the struggle for me, feeling like I have to handle things alone. That is why I come here, to listen, talk, cry, share, give and get support. Here, we feel your pain, and when it’s time to laugh about the stupid things that happen, we do that too. It isn’t going to be an easy road for you, but you have courageously come thru 4 years of fighting, and I admire your guts and spunk. If you can, I suggest finding one thing a day that is not related to the disease, to make you smile..start with just one thing. See if for 15 minutes you can do something to take yourself away. I know that even as few as 15 minutes can seem like a lot for me some days, but, you can look back and think..hey, I made it through those 15 minutes.
When your family and friends close by won’t listen and support you, come here, because WE will. Keep writing!! It does help to get it all out. When I write and then a letter is published and I look back, I wonder, where the hell was I when I wrote that? Writing is healing. Thanks for sharing yourself with us. We’ll be here to listen some more!

]]> By: amy http://dearthyroid.org/hashi-kiss-my-ass-otos-disease/comment-page-1/#comment-3765 amy Wed, 18 Nov 2009 04:22:37 +0000 http://dearthyroid.org/?p=2477#comment-3765 Luci! You are so brave and wonderful for writing this letter! I also recommend becoming as educated as possible so that you CAN take control of your health, body, and life! You can do anything that you set your mind to! A dr, yes! And you would be the best thyroid dr because it something that you deeply understand! A wonderful man who loves you for who you truly are...why the hell not? Good sex...yes, occasionally!(lol) Fight hard sister and do not give up! As someone who has a very supportive family(meals are always made so that I can enjoy them w/ my fam because of my diet) I feel so grieved for you. But anyone of your thyroid sisters and brothers are here for you. We love and understand you! Think about what the other ladies are saying about gluten/wheat allergies. It made a huge difference for me. Start with you. Focus on you. Get you healthy first and I believe everything else, all your dreams and desires, will follow! I cannot say what it would be like to be a teen with hashimotos. But I do believe this disease can define you in a much more positive way! It starts with you and the choices you make...YOU CAN DO IT!!! Sending love to you. Please keep us updated on how you are doing! your thysista, Amy Luci! You are so brave and wonderful for writing this letter! I also recommend becoming as educated as possible so that you CAN take control of your health, body, and life! You can do anything that you set your mind to! A dr, yes! And you would be the best thyroid dr because it something that you deeply understand! A wonderful man who loves you for who you truly are…why the hell not? Good sex…yes, occasionally!(lol) Fight hard sister and do not give up! As someone who has a very supportive family(meals are always made so that I can enjoy them w/ my fam because of my diet) I feel so grieved for you. But anyone of your thyroid sisters and brothers are here for you. We love and understand you! Think about what the other ladies are saying about gluten/wheat allergies. It made a huge difference for me.
Start with you. Focus on you. Get you healthy first and I believe everything else, all your dreams and desires, will follow!
I cannot say what it would be like to be a teen with hashimotos. But I do believe this disease can define you in a much more positive way! It starts with you and the choices you make…YOU CAN DO IT!!! Sending love to you. Please keep us updated on how you are doing! your thysista, Amy

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