Posts Tagged ‘Dear Thyroid’

Comment Of The Day March 13, 2010

dearthyroid | March 13th, 2010 | No Comments »

Comment of the Day, March 12, 2010

Today’s “Comment of the Day” for “Flying with Broken Wings: Making the Most of Life with Chronic Illness”, is Lori’s comment. Every comment was absolutely FABULOUS, engaging and well thought out. We learned even more about our community’s outlook on life post-diagnosis, dealing with chronic illness for several years; as well as some extremely witty comments. Some comments were from people that don’t have a chronic condition who wanted to share their thoughts with Sarah – We welcome you and appreciate your input. We also heard from our resident vet about the affects pets have on people living with chronic illness and much more.

Lori says: March 13, 2010 at 12:47 pm

Sarah, you did a beautiful job and there are so many helpful ideas on how to not let thyroid disease ruin us and define us, which I think is so important.

Sometimes I still hear that little voice in my head saying, you’ve been robbed of so many years, it’s not fair, and I have a moment of feeling sorry for myself. I think thats the toughest part for me still, but I let it happen and then move on; thankfully, I’m not stuck in that awful place any more. I am so happy you are diagnosed and on the right track. I often think of you because the first thing I noticed when we met was that you were born the year I graduated high school and it was during those years that I became so much more aware tha something was awry.

Thanks again for a wonderful column.

Lori

The “Comment of the Day” from our “Thyrants” post by HD in Oregon embodies the spirit of why rants are so important and the humorous side of life in the Gland Canyon.  “Thyrants” are an integral part of our community; it gives each of us an opportunity to share the gland good and the gland bad. We celebrate each other’s successes and catch each other when we fall. We make each other laugh and cry. Ultimately, we understand what we’re going through by reading each other’s rants. This, among other things, connects us with each other and reminds us that we’re not alone.

HD inOregon says: March 13, 2010 at 12:10 pm

Congratulations to all for some “grant rant”-ing!

Thank you, Lori and HD, and EVERYONE for sharing more of you with each of us!

Love,

Dear Thyroid

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Going For The Throat: Confessions of a Health Insurance Neophyte

Robyn | March 10th, 2010 | 24 Comments »

Going for the Throat: Confessions of a Health Insurance Neophyte

I’ve had health insurance of one kind or another my whole life.  I’m fortunate for that, and I know it.  But it wasn’t until my diagnosis with Hashimoto’s disease last June that I actually paid attention to my health plan.  The good news is that not only am I paying attention now, but that it appears that my family’s latest health plan is a good one (I think…).

It’s not that I’ve never used coverage before–I am no stranger to doctors and hospitals.  But in the past, my care largely fell into two categories: routine yearly health check-ups, and catastrophic/accident care.  Yearly routine care was pretty much my annual gynecologist appointment, which usually went without incident.  But, being an active individual who has been involved in relatively high risk activities for most of my life, I’ve had my share of, ahem, unforeseen health issues.  There was the tibia fracture in 1993 slam dancing in the mosh pit at a Stuck Mojo concert.  And then the freak-accident fall with my horse while just walking back to the barn (after successfully schooling some hairy cross country elements) that resulted in a concussion in 2002.  The lacerated thumb ligament from a horse kick aimed at my face in 2004 occurred almost a year to the day after a young horse actually did land a kick right between my eyebrows–although both those incidents were covered by Worker’s Compensation.  I wish I could say this was the extent of it, but, unfortunately whether due to known, calculable risks, or plain and simple bad luck and balance (hello, fractured metacarpal 5 from falling off my Dansko clog), I have had plenty of cause to actually USE my health insurance benefits more than I would have liked.

The Hashimoto’s deal is different, of course, and something to which I know you can all relate.  I’ve now entered the realm of chronic disease.  For most of us, once we have a diagnosis with an auto-immune disease, endure a thyroidectomy for cancer, or take that radioactive pill, we gain admission to a world where we, and our current and future insurance companies, know that we are gonna rack up some medical bills for the rest of our (hopefully long) lives.

While I was working at getting my diagnosis (which, like many here, took some time), I was too concerned with my health to research my health insurance.  My husband (who actually has the policy) didn’t really know anything about it either.  Up to this point in our lives, our health insurance knowledge consisted of “fill out these forms” with an HR person, which resulted in some sort of card to stick in our wallets.  Over the years, through various employers, we’ve had Cigna, Tri-Care, Great West, and now a Blue Cross/Blue Shield (BCBS) plan–and to be honest I have not noticed any difference.  When your employer has a deal with an insurance company, your options are take it or leave it–while individual health plans (ie, not employer-sponsored plans) may offer you more choice, it usually comes at significant cost.

So, empowered with the determination to really understand and get the most out of my health plan, I started with the most basic step–I visited their website.  As predicted, this was not going to be easy.  The website is huge–deeply layered with all kinds of information, of which I have barely scratched the surface.  Once logged in, I could easily access my claim history information.  In the last 10 months, my doctor visits and testing have cost just over $10,000, of which BCBS paid an “allowed benefit” (the agreed amount for an in-network provider) of just under $5,000.  For this coverage, my co-pay was $200.00.  OK, whatever.  I want the REAL GOODS.  What have you done for me lately?

Again, it’s not an easy website to navigate, but so far I have found some areas that I will be checking into deeper (and reporting back anything of note):

  • They have a section with online tools and services, such as finding new doctors, estimated costs, and different forms and contact numbers.  Eh, mildly interesting.
  • OOOHHH! A section of discount options for “alternative therapies” and fitness centers.  A quick look reveals that with my insurance card I can get a 20% discount on acupuncture, pilates, somatoemotional release (I don’t even know what that means), nutritional counseling and dozens of other programs.  Wow, who knew?  Not me!
  • Another section has an exhaustive “Wellness” area.  On a brief tour it is less than impressive: weight management has food diaries, exercise logs, fast food restaurant nutrition data (as if?), healthy weight calculators, etc.  The nutrition portion is just as bad.  Looking at the children’s nutrition section, one of the many articles has 5 fresh lunch ideas for kids.  One of these is called a “Bacon Cruncher”.  Your honor, I rest my case.

Admittedly, I have not delved too deeply into the website’s resources.  I would assume, however, that I am not the only person who does not have hours to waste spare, either.  Regardless, I would give the additional “wellness” resources a C+.  The information is hard to find, not necessarily helpful, and in some cases, not necessarily correct.  But, it is there–a health insurance company’s attempt to prevent disease through healthy living?  Call me a skeptic, but for now I think it may just be lip service.

Check it out yourself, let me know what you think:  www.carefirst.com.

Find out more about Robyn.

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Dear Thyroid San Antonio Meet-Up, February 5th

LizSchau | February 10th, 2010 | 6 Comments »

san anotnio meet-up

I couldn’t have asked for a nicer day for our meet-up — the San Antonio rain of the past few days had let-up enough and granted us a sunny, windy afternoon; just perfect for coffee and chatting.

There were six of us total — Lynn, Kristin (and her five-month-old), Greg (not pictured), Bee, and I (Liz).  We met at the Little Aussie Bakery, which is actually more of a cafe, with a full lunch and dessert menu — all gluten-free.  (Our table ordered vegetable soup with GF bread, veggie lasagna with garlic bread, and cookies and cake to take home.)  This location definitely set the tone for the meet-up in the most wonderful way.  Three of us are already gluten-free, and the other two said they’re very familiar with the diet.  We talked food and other lifestyle choices we’re making to work towards wellness, even though only two of us have thyroid histories.

We also dished environmental toxins (endocrine disruptors), contaminated vs. clean drinking water, family histories of disease and genetic predispositions, our food supply, and of course, Dear Thyroid.  Overall, the meet-up was a positive, uplifting two hours with people all equally interested in working towards more wellness, whichever way works best for them.

I Thyove You

dearthyroid | October 13th, 2009 | 9 Comments »

thyroid patient letters, dear thyroid, thyroid disease support, thyroid patient support

Dear Thyroid,

How are you doing today? I hope that all is well with you and your Endocrine family. I know that when I have support in my life, things seem better. So I hope that you are supported by your many glandular friends.

My days, Thyroid, are on the mend. I have been researching about your devious ways, and now I feel empowered, and ready to fight back. But, my goal is for us to be friends, and actually work together.

Twelve years ago, I allowed you to take the reins, and because of that, you lead me down a very dark and scary path. My health was not good, thanks to you, and you had many doctors puzzled. I have to give you credit though; you are very smart and persistent. But, by you trying to be the master, you pushed all of your supporters away. And that pushing is what caused me to be infertile. What have I done to upset you so much? You know that having a child is a dream of mine, and you come along, and crush it. You can try all you like to keep me on the sidelines, and keep me feeling bad, but I am here to tell you that your time is up. I am taking back my life, and you are going to comply. 

Please do not be upset with me. I have spoken to your supporters, and they all agree that you need to work with us in order to be happy. Thyroid, how can you be happy, when everything else around you is so miserable? I thought you were intelligent enough to notice others’ discomfort.

So I am writing to you today, begging you to talk with us. What can I do for you that will enable our happiness? Is there something that you need, or require of me? I am very sorry that you have decided to ignore me, now that I am feeling better.

I really do need you, Thyroid, and I love you. Always know that you will be a part of me, no matter where I am in life. I really want us to be friends. After all that we have been through together, I don’t think that is asking too much. Please give it some thought, and in the meantime, I will support you as long as you need. 

Thank you for listening to me. I am here for you if you need to talk as well. And don’t worry; those feelings of rage, depression, and frustration have not been around in awhile, so rest assured that you will not be ambushed by them. The only emotion available to you now is love. 

* Arms open wide, waiting for an embrace*

Love,

Courtney

(Bio) My name is Courtney Hamm, and I am a thyroid survivor. I have suffered from Hashimoto’s for the past thirteen years. I have ridden the emotional roller coaster that we have all ridden, and it seemed as if there was no end in sight. I am 31 years old, and each day, was a challenge. But I refuse to allow this to consume me any longer. I am a figher, and I am going to beat this… just like the rest of you will.