Posts Tagged ‘thyroid cancer blog’

Life Redefined My Cancer Story

Joanna Isbill | March 9th, 2010 | 24 Comments »

Life Redefined, Thyroid Cancer in Young Adults Column written by Joanna Isbill

Written by Joanna Isbill: Editor, Life Redefined (Thyroid Cancer in Young Adults Columnist)

It was Wednesday, October 8, 2008. Just a few days after my 24th birthday. I woke up with an ache in my neck. I reached up and felt a large knot on my thyroid. Something inside me told me it was cancer.

The next day, I saw my primary care physician. He ordered blood work, sent me to have an ultrasound, and referred me to an endocrinologist. The ultrasound showed three nodules on my thyroid—one on the left and two on the right. The blood work indicated Hashimoto’s thyroiditis. I met with the endocrinologist. He told me that the chance of this being cancer was very small. However, he still recommended I have a biopsy to confirm what the blood work suggested. Another endocrinologist in the practice performed the biopsy. It was less than pleasant. Afterward, I heard him talking to my endocrinologist about the appearance of the nodules. They were talking in hushed tones about calcifications. I later learned that calcifications are commonly seen when cancer is present.

On October 21 I got a phone call from a medical assistant at my endocrinologist’s office. She told me I needed to come in the next day to get the results of my biopsy. Who calls and asks you to come in to tell you everything is benign and you’re in better health than ever?  After this phone call I broke down and cried for a long time. Even though I had known in my gut all along I had cancer, that phone call still hit like a brick. I will never forget the emotions that coursed through me that day.

The next day, my endocrinologist confirmed what I already knew. The biopsy indicated papillary thyroid cancer. I had a total thyroidectomy and central node dissection on November 5, 2008 followed by RAI a few weeks later.

I’ve been through several different frames of mind since I was diagnosed with cancer (which I’ll discuss in further detail in future installments). Relief. Denial? Fear. Acceptance. The day I was actually diagnosed with cancer I felt relief. I was relieved because, although I knew in my gut I had cancer, the actual diagnosis confirmed my instincts. During the two or so months after my surgery, I think I was in shock. I don’t know if it was denial or not, but I do know that I had not yet absorbed the fact that cancer was no longer something that happens to other people, but something that happened to me. Once I absorbed this, the fear set in. The fear that cancer brings is crippling. It is absolutely all-consuming. After I got over the fear, and I did eventually work past it, I was left with acceptance. I accept that I have cancer, and I accept that it’s something that has changed my life.

Throughout the weeks and months after getting my biopsy results I was bombarded with emails and cards full of encouraging messages. Many of my friends who sent these messages told me they hoped I could soon put this all behind me. If only. Cancer is not something that I can put behind me. I carry it with me every single day. It has changed every single part of my life. As much as I fought the change, it happened. I am a different person. And so it will never be “over.”

Cancer left my life in pieces. But when I tried to put them back together, I realized they no longer fit the same way they once had. It’s a work in progress, but I am trying to figure out where everything goes, redefining my life.

I’m looking forward to walking this road with you, because it’s not a road that should be walked alone.

xoxo,

Joanna

joanna@dearthyroid.org

Read Joanna’s Bio.

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Wings Of Hope Week 14 Update… Only 40 Days Until The Race

Dear Thyroid | March 8th, 2010 | 1 Comment »

Wings of Hope Kicking Thyroid Cancers Ass

There are only 40 days left before the Relay for Life!  Can you believe it?  We are still the number one team with a $1,000 lead over second place!  Our team is furiously working away to get ready for the big day.

First, I want to say how great it is to watch the Oscars and see commercials to raise awareness for cervical cancer.  It is so important to raise awareness for all cancers – not just the pink one.

Second, a major thanks and virtual standing ovation go out to Angel McMellin for all of her hard work on our bake sale.  Not only did she bake enough to feed the entire hospital, but she ran our event at the Johns Hopkins Outpatient Center and raised $320 for our team!   And thank you again to our supporter, Kim Thompson, who donated her own baked goods to help us in our fundraising efforts.

Saturday’s team meeting was a fun lunch event and we covered a LOT of information.  Thank you to All American Coin & Jewelry Company (www.aacoinco.com) for sponsoring our lunch.  Those crab cakes definitely got the creative ideas flowing!

If Bitching Was a Cure for Cancer, I'd be in Remission

If Bitching Was a Cure for Cancer, I'd be in Remission

Important Information For Team Members…

In order to get an official Relay for Life participant shirt, you MUST raise $100 by March 10, 2010!

Again, if you haven’t all ready, I encourage our team members to log in to their participant centers on the ACS website and start updating their personal pages for donations.   There is also an application on facebook that will help you with meeting your $100 personal goals.  Both of these tools will provide donators with official receipts from the American Cancer Society.

Please check your email for an important update on team and individual fundraising incentives provided by the American Cancer Society.

Wings of Hope Relay for Life, American Cancer Society

Online Fundraiser Update…

Our online fundraiser is going strong thanks to our wonderful ladies at Dear Thyroid.  We are encouraging the Dear Thyroid community to form fundraising teams to help us in our goal for the American Cancer Society.  The first team to raise $3,000 wins TEN free “Invisible No More” bracelets; the first team to raise $1,500.00 wins FIVE free bracelets; the first team to raise $750.00 wins THREE free bracelets; and the first team to raise $500.00 wins TWO free bracelets.  For more information, contact me or visit us at http://main.acsevents.org/goto/wings2010.  The contest ends March 16th!

As always, thanks to our supportors and our team members for their tireless fundraising efforts.

Until next week,

Wings of Hope

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Wings Of Hope Week 13 Update: Everybody Bake!

Dear Thyroid | March 1st, 2010 | No Comments »

bake sale thyroid cancer, Wings of Hope

With only 47 days left until the relay, Wings of Hope has raised over $3,000.00!  Thank you to those of you who have contributed to our success and have ultimately put us one step closer to a world without cancer!

This week is crunch time for our team and we need all the support we can get.

Thursday, March 4 from 6 a.m. to 1 p.m.

Baking for a Cure for Thyroid Cancer

What’s going on…

Wings of Hope is holding a bake sale at Johns Hopkins Outpatient Center, 601 N Caroline Street, Baltimore, MD.  Angel is furiously baking away in preparation for Thursday.

What we need…

  1. We need volunteers to help us run the event any time from 6 a.m. to 1 p.m.
  2. We need more baked good donations.

Please contact Angel at angelmcmellin@live.com or myself at chrisp730@yahoo.com if you can help.

Also, please update your attendance status by Tuesday here.

Wings of Hope Bake Sale Banner

Thank you to…

- Kim Thompson who is donating her famously yummy red velvet cupcakes.

- Johns Hopkins Outpatient Center for allowing us to host our bake sale in their facility.

Friday, March 5 from 1 p.m. to 4 p.m.

What’s going on…

RFL JHU Committee is hosting a Birthday Bash to raise money for the American Cancer Society at the Homewood Campus Beach.  Wings of Hope will be distributing thyroid cancer awareness materials at the event.

What we need…

Volunteers to help us distribute pamphlets.  Please update your attendance here.

Thank you to…

ThyCa for donating our awareness literature.

Saturday, March 6 at 11:30 a.m.

What’s going on…

Wings of Hope is having our first (and only) team meeting prior to the April 16th relay at M&S Grill on Pratt Street in Baltimore, MD.

What we will be discussing:

-       Introductions

-       Our bake sale

-       Fundraising efforts

-       Logistics for April 16

What we need…

A final headcount by Thursday, March 4th.  Please update your response on facebook.

Important Information For Team Members…

In order to get an official Relay for Life participant shirt, you MUST raise $100 by March 10, 2010!

Again, if you haven’t all ready, I encourage our team members to log in to their participant centers on the ACS website and start updating their personal pages for donations.   There is also an application on facebook that will help you with meeting your $100 personal goals.  Both of these tools will provide donators with official receipts from the American Cancer Society.

Online Fundraisers Update…

Our first fundraiser for the $25 Macy’s Gift Card ends today.  Unfortunately, no one on our team raised $500 in the month of February to win the contest.

Our second fundraiser is going strong thanks to our wonderful ladies at Dear Thyroid.  We are encouraging the Dear Thyroid community to form fundraising teams to help us in our goal for the American Cancer Society.  The first team to raise $3,000 wins TEN free “Invisible No More” bracelets; the first team to raise $1,500.00 wins FIVE free bracelets; the first team to raise $750.00 wins THREE free bracelets; and the first team to raise $500.00 wins TWO free bracelets.  For more information, contact me or visit us at http://main.acsevents.org/goto/wings2010.  The contest ends March 16th!

April 16th Update…

We at Wings of Hope are very excited to announce that our newest team member, Rona Taylor, will be providing our team with some amazing food the night of the relay.  Thank you, Rona!

Thank you to every one for supporting us, our fundraising efforts, and our goal of living in a world free of cancer.

Until next week,

Wings of Hope

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I Love You, But I’m Leaving This Relationship for a Healthier One

Dear Thyroid | February 25th, 2010 | 14 Comments »

Michelle, thyroid patient letter, Dear thyroid letters

Written by Michelle (Thyroid Cancer Patient)


Dear Thyroid,


Goodbye. You know you left me with no other choice than to end things with you. You changed. At first it was the little things I started noticing. You gave me clues. Of course, when it got to the point that I needed to find out if my suspicions were true, you pulled it together enough to hide your true intentions. You let the doctor and me believe everything was “normal”. You lied to all of us.


After that first intervention to confront you, you were quiet for a bit, a little more careful to cover your tracks. Or maybe I just wanted to believe things were okay between us. Then you started getting sloppy. A little more bold in your malicious actions.


I gave you a year to get your act together, truly believing the story you told the doctor when he ran his tests on you. But my intuition won out. Again, we went to get you checked out. You were good, a real deceiver. You had everyone fooled—but not me. This time I was on to you.


I gave you three months, then we went to see another doctor. This time, your true prescence was felt. This doctor caught you off guard, called you out of hiding. Discovered the unhealthy entity you were becoming. Puffed up and proud you were. Brazen and bold. The doctor made me look in the mirror and confront you. This doctor didn’t buy your story. We called you out.


First the ultrasound. I still believed in you at that point. Denial, I guess. Well, you gave us enough suspicion to investigate you further. Next, the biopsy. That made you mad. You never caused me pain before that. Were you angry you weren’t able to hide anymore? You really changed, didn’t you? You were growing into an entirely different thyroid than the one I’d known for 38 years. Shocking. But at the same time, not. I had my feeling. I listened to my instincts. I wouldn’t take no for an answer and kept digging for the truth.


Well, now you’re gone. I cut you out of my life. It’s only been five days and I feel so much better. A weight gone, literally.


I’m so excited to start my new life without you. I know things might be difficult from time to time, adjusting to this change of living without you. But I’d rather be without you. I’m healthy now. With the support of my family and friends and an amazingly compassionate team of doctors, I am moving on to a better, more fulfilling life.


It was good while it lasted with you. I hope you found peace. Someday, maybe thyroids like you won’t hurt people anymore.

~Michelle


(Bio) I am a 38 year old female in Los Angeles. I first suspected about 18 months ago that I might be hypo-thyroid. Blood tests were “normal”. Exactly a year later, with intensifying symptoms I requested a re-check. Again, “normal”. Listening to my intuition, I sought out an endocrinologist. He poked and prodded and found a nodule. Again, “normal” blood tests. But before the results even came back, he sent me for an ultrasound, followed a few weeks later by an FNA biopsy which was strongly indicative of papillary cancer. Four weeks later, a total thyroidectomy and removal of the central compartment lymph nodes in a three-hour surgery. The nodule was between a grape and walnut in size. I had no difficulty breathing or swallowing. No visible indications until the doctor made me swallow in front of a mirror. Then it just looked like an “adam’s apple-ish” kind of thing moving up and down. I had ever worsening hypo-symptoms with “normal” levels and an intuition that wouldn’t let me stop searching for an answer.

Share your story with Michelle and lend your support in comments

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