Posts Tagged ‘Thyroid patient letters’

An Infinite Number of Monkeys Typing At an Infinite Number of Typewriters Might Not Produce Shakespeare, But They’ll Still Be Ahead of the Insurance Companies and Pharmacies

dearthyroid | March 11th, 2010 | 24 Comments »

An Infinite Number of Monkeys Typing At an Infinite Number of Typewriters Might Not Produce Shakespeare, But They'll Still Be Ahead of the Insurance Companies and Pharmacies

(Written by Sharen, Thyroid Patient)

Dear Thyroid,

Happy New Year. You and I have finally WON! Well, let’s say we’ve won the first step, and that is finally getting the insurance company to open their eyes. Not sure if it was my patient call, or the medical bills or the doctor’s office finally calling to let them know that the generics are not accepted in my body. Anyway, I received a call today to let me know that they are letting me take the correct medication for one year.

Dear Thyroid,

Well, two days have passed so I called the pharmacy, and—yep!—they are saying that the insurance company will not process the medication. So I called the insurance company back, and they are stating that the pharmacy did not call them. So, they will call the pharmacy back, then me.

Dear Thyroid,

Another day has passed and so far not a call from anyone. The pharmacy states that the insurance company didn’t call, so I will call the insurance company. Called the insurance company and the lady suggested that I stay on line while she talks with the pharmacy. She called them, then she talked with me, stating that the pharmacy was lying and that the medication will go through at a certain dosage only per pill.

Dear Thyroid,

Well, another day has gone by and I am still fighting with the pharmacy and now the doctor’s office. How hard is it to understand that the pill can only be 25, not 50! Finally, after 4 HOURS, I’m able to pick up the right dosage and the insurance company is paying.

Dear Thyroid!

Oh Good Grief! I stopped at the pharmacy and they have not even started to work on the prescription. Then they state they do not have the full amount, that I will have to come back sometime next week. They also stated that none of this was their fault.

Dear Thyroid,

I am back on the right medication, and I am feeling better. The thyfog is less and the thyblindness has eased as well. The thought of seeing the doctor in March is not high on my list. I have kept record of all the running around that has been done due to her people and herself and I feel she needs to know that this is not the way people should be taken care of.

But I won, ONE battle, and maybe because of this victory, others will be able to fight and win as well.

So, OK Thyroid! Wakee….Wakeee….

Sharen

–

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My Thylolly Sucks

dearthyroid | February 23rd, 2010 | 13 Comments »

Thyroid songs, My Thylolly Sucks, Dear Thyroid, thyroid patient writings

Written by Lolly (Graves Disease/Hyperthyroidism)


My ThyLolly sucks, you made my heart go beat-box.

You were as sweet as sugar, you little fucking bugger

Ha ho my ThyLolly sucks,

Now you had to leave me,

Because it really grieves me,

You left me all fucked up.

I hate ya, I hate ya, I hate ya so,

That I want you to know

I need ya, I need ya, I needed ya so

That I had to let you go

My ThyLolly sucks, you made my heart go beat-box

You set my body on fire, You left me with no desire,

My ThyLolly sucks, my ThyLolly sucks.

Love thylolly

Taming Of The Thyrew

dearthyroid | January 21st, 2010 | 11 Comments »

Dear Thyroid letters, Jody Turek, hypothyroid patient, hypothyroidism support

Written by: Jody Turek (Hypothyroid Patient)

Oh glorious gland, knower of all things metabolic. Why do you trouble me so? I get these little glimmers of hope that suddenly disappear without leaving a phone number. Can I please have a tantrum right now? A good old throw yourself on the floor and kick and scream tantrum. Anyone want to join me?

Jody Turek
www.hypogirl.com

Who can’t relate to wanting to do the drama diva swan dive?! You want to have a tantrum, go for it, say it loud and proud in comments—thy-related or otherwise.

My Little Bundle of…Joy?

dearthyroid | January 12th, 2010 | 12 Comments »

My Little Bundle of...Joy, Hypothyroid disease support, Dear Thyroid letters

Dear Thyroid;

It’s been a while since you’ve kept me awake at night, and we both know that when you put the toothpicks to my eyelids and prop them open, I do tend to think of you more, and then of course, I feel the need (or is it desire?) to communicate with you. I’m sitting here with my chin in my hands, slits of eyes..yet I feel the stinging woodiness of the pointy toothpicks, just wondering why you want to bother me now. It’s so much work to try and deal with you. The efforts I put in are exhaustive. Right now, I don’t have the strength to reach my pinkie over to press the exclamation point. All you’re gonna get is dot dot dot…

Remember the class in high school? The one that was supposed to teach kids about parenting? You know the one–theyhad to take care of an egg all weekend, or the allotted time prescribed by a teacher. I was thinking what would it be like if I had to physically see you and take care of you for a weekend. What would that be like? I’m thinking that the doctor would present you to me in a little fleece blanket, one that is sky blue with butterflies in pastel colors. I’d pull back one corner of the little blanket to take a peek at you, expecting a smooth cherubic pink (albeit maybe a little chubby) thyroid gland with cute little wings, wriggling and almost hearing a little coo…but what I see is you–a wrinkly, grayish dusky pink with a dull pallor. One of your wings is smaller than the other and the tip is bent and dried up, not unlike an overcooked chicken wing. There’s no wriggling and cooing in you, you’re too busy just trying to breathe, as your little body heaves up and down and I hear a tender sigh. I wonder out loud to myself, “How the hell am I gonna take care of this?! (oh..exclamation point..hey, I did it!) This thing is sickly.”  The doctor quickly points out to me that he knows this already, and notes that I am up to the challenge now. Why did he not discuss this with me ahead of time? I had the ultrasound; didn’t it show up? ”Oh really??” I ponder as one eyebrow cocks over my wide eyes. Okay, let’s get you outtahere so we can begin the weekend already. There’s a lot to do if I’m going to take care of you.

It all begins as I try to leave the office. People see the pretty little blanket and want to take a peek at you. “Oh, poor dear…you’ve got your hands full,” says one.  “It’s so..so..tiny,” says another. I hear their whispers as I go by. “That one’s never gonna make it, poor thing,” or, ”Did you see how ugly it is? Bleah.” I’m in such a hurry to leave–is it that I don’t want anyone to see my not-so-perfect thyroid?  Hey, I’m stuck with you, so let’s go and make the best of it. When we get out into the fresh air, I feel you stir a little under that blanket. Are you cold? hot? I uncover you a little and you appear to settle..maybe you were hot, but you gravitate towards the little patches of sunlight. You like that Vitamin D, don’t you? We’ll stay out in the sunshine for a little while. We get you home and into the house, and I put you, blanket and all into a little breadbasket–well, it looks like a bed, what the heck. I examine you again, and just your color and dried-up bits make me think that you’re dehydrated, so we share a bottle of water. That went down pretty easy…we’ll have some more later.

Knowing that you’d be arriving soon, and suspecting that you would not be well with all the symptoms I’ve had carrying you for this many years, I’ve been reading up on how to take care of you. I’m just not sure how you will let me know what you need but right now, I am so tired. Can we just take a little nap? We fall asleep on the couch, and I awake to your fussing about. You are a fussy little thing, aren’t you? I’m trying to figure out what it is you’re needing. Some food?Okay…I’d rather be eating cold pizza, but let’s see, I’ve gotten prepared ahead of time for you. How ’bout some fresh fruit and a little piece of cheese, maybe some greek yogurt with a drizzle of coconut oil and honey?  I eat it. You seem to like it. We’ll have to see how we both react later. My brain is a little fuzzy yet.

Let’s do something. I wrap you up and take you next door to visit my family. At first they’re eager to see you, but when they realize that you’re not perfect, they don’t want to be bothered with you. They’d rather talk about their cooking utensils. Fine. I have to go to work during the weekend, so I bring you along with me. They want to see you too, but just like family, they think that I should just put you on the shelf and forget about you and get on with things. Get the work done. Buck up. I can’t do that…not when you’re right there with me, staring me in the face, especially with that crooked wing.. You’re mine and sometimes you need to come first.

Funny, before all of this and until you came along, I smiled more, had increased energy, and did everything that everyone asked. A yes girl? Maybe… Now, the good happy smiling moments are fewer, and I really have to focus on them and celebrate them. I am a little quicker to stand up for myself and say NO once in awhile. That’s not always a bad thing. Are you teaching me to take care of myself, as I take care of you?

The weekend goes by pretty fast. You keep me up at night. I rub coconut oil on you. Fussy you. Brainfogged me. We take our vitamins and medicine. We get a little sunshine and nap when we’re tired. I’m learning it’s easier when I really take a look at you and try to figure out what you need and want. It’s coming easier to me. It’s almost time to give you back, but I’m thinking…I’m cancelling the appointment and I’m going to keep you, crooked dried up wing and all.

I love you.

Kathy Taylor