Comments on: Thybusive No More

By: Lolly

Lolly — Sat, 21 Nov 2009 22:29:09 +0000

Kathy,

Sorry I am late in replying to your beautiful letter you have such a way with words that I understood everything you were saying and it made sense.

I hope you find that recipe for life and have a feast, infact why not throw a thyanquet (banquet) we can all join you, we here for you.

Lolly

By: dearthyroid

dearthyroid — Fri, 20 Nov 2009 22:31:50 +0000

That’s great that your doc thought to test your thyroid, first and foremost, Nina. Most times we wait around for years until they do the damn blood work.

By: Nina Feldman

Nina Feldman — Thu, 19 Nov 2009 23:44:14 +0000

Kathy, I feel so bad for you having an adverse reaction to SSRIs; that must have been terrible! I must admit it made me feel pretty strange the first couple of weeks, so I had to raise the dosage a tiny, tiny bit at a time, diluting it in juice. Now I don’t notice anything at all except a lessening of self-bashing.

The psychiatrist I saw initially was smart enough to do a thyroid test FIRST thing, and I thank him for it to this day.

Have you tried any other types of antidepressant (carefully, in small doses)?

By: yodat/Jody

yodat/Jody — Thu, 19 Nov 2009 14:29:27 +0000

DT,
The reason I really didn’t talk about my disease when I was first diagnosed was I felt it was something I did. I was embarassed that I let myself gain weight, get depressed and basically complacient with life. I was a disapointment to myself. Also, I felt why should I have to justify why my skin is dry, hair falling out and just plain tired to people. Just the thought of explaining everything was tiring. Besides – everyone should love me for who I am! What helped me scream from the rafters? THIS SITE! In my neck of the woods NOONE that I know of suffers from Thyroid disease. So, when I bring it up to people half of them go – What’s a Thyroid? After I smack them upside the head I then have to explain what it is and what it entails. Then they shrug their shoulders in a “so what fashion”. SO – this site has helped me in being a little more open about my Hyponess. It has helped me become more accepting of this disease and being able to control IT rather than IT control me. It’s great to have Hypo friends!

By: Kathy

Kathy — Thu, 19 Nov 2009 07:21:29 +0000

oh Robyn, those shoes ARE perfect! What a job I could do with those!
Nina, I wish that I could take Prozac or some kind of SSRI..It was actually adverse reaction to Prozac that started the ball rolling to getting the hypo diagnosis. Whatever came first..I was being treated for depression and developed serotonin syndrome from the Prozac, and lactic acidosis from an adverse reaction to Metformin. In the middle of a near death experience they tell me now, I was the one who begged for a thyroid test. From that time forward (it’s been well over a year) I have a difficult time taking anything but vitamins and my Levothyroxine. I have adverse reactions to most drugs. It is weird. However, I am using your suggestions 2, 4, 5. amd 6 in large quantities!

By: Nina Feldman

Nina Feldman — Thu, 19 Nov 2009 05:33:46 +0000

Yes, dearthyroid, I’ve found several things that help my moods, at least temporarily:

1) Prozac. My best advice is not to be afraid of Prozac or other SSRIs such as Lexapro, etc. Prozac really does not make me feel like I’m “on drugs.” Like thyroid supplementation, it’s more like, “Oh, great, now I feel closer to normal!”

2) Talking about my experience with others, like we’re doing here.

3) Wine (in judicious amounts)

4) Massage

5) Not overcommiting. Especially during this hectic season: allow yourself to say no to some invitations and just stay home and watch the Hallmark channel, or whatever else you find soothing.

6) Deep breathing. If all else fails, lie down and take long, slow, deep breaths. It’s okay to listen to music or podcasts or whatever at the same time.

By: Robyn

Robyn — Thu, 19 Nov 2009 03:33:48 +0000

Your letter is so beautiful, it makes me feel like it’s a movie in my head. Unfortunately, it’s not a movie–it’s your life! I’ve been to some of these places too. The D3 has helped me tremendously. Not sure about the Levoxyl yet, I just had more blood sucked today.

I say, shout it from the rooftops. I email one liners to friends, even those I barely have talked to in years, just so I feel still connected and “out there”.

The brain fog is a fucking killer, though. It’s all right there, but I can’t always access it. I really did think I had early onset dementia right before I was diagnosed, and well, it’s not much better, but at least I know it isn’t *in* the brain.

As for shoes, this pair of Stella McCartney’s look like they’d pack a nice punch…
http://onlyhigheels.wordpress.com/2009/08/28/the-real-stiletto-heels/stella-mccartney-fall-2009-04-3/

By: dearthyroid

dearthyroid — Wed, 18 Nov 2009 22:08:51 +0000

OHHHHH YEAHHHHHHH Kathy!!!!!!! High pointed heels all the way!!

By: dearthyroid

dearthyroid — Wed, 18 Nov 2009 22:07:27 +0000

Really Jody? That’s surprises me because you’re so outspoken (in a good way) about your disease. What made you shift?

By: Kathy

Kathy — Wed, 18 Nov 2009 19:22:46 +0000

If I have but one moment of joy every day, it’s gonna be a good one. My computer monitor is filling up with mantras. “Write it on your heart that every day is the best day of the year” “Giving up is simply NOT an option” “Good times are coming” They sound sickenly sweet sometimes,but it’s a place to start. Maybe if I see it, even subliminally I will start to believe it. For now, one day at a time, I AM trying to kick this disease’ ass. It’s selecting the boots to wear.. polka dotted rain boots..not today.. I’ll be wearing the pointy steel toed stilletos! Take that thyroid! Ungh!