Comments on: Thyurology Too S&Mee For Me http://dearthyroid.org/thyurology-too-s-and-mee-for-me/ We Are At The Beginning Of Change... Wed, 08 Feb 2012 00:01:23 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Pam http://dearthyroid.org/thyurology-too-s-and-mee-for-me/comment-page-1/#comment-4003 Pam Tue, 01 Dec 2009 08:02:06 +0000 http://dearthyroid.org/?p=2572#comment-4003 Vicki, just wanted to echo the comments above. What a well-written piece but I only wish it were fiction. I'm sorry you had such a horrible experience and are still dealing with all that BS. We are all here for you. I hope you find some answers and that things improve for you soon. I have Graves' & have been on disability for 2 yrs. after 5 yrs. being undiagnosed. People often tell me it's worse to be hyper but with stories like yours, I'm not so sure. Hugs, Pam Vicki, just wanted to echo the comments above. What a well-written piece but I only wish it were fiction. I’m sorry you had such a horrible experience and are still dealing with all that BS. We are all here for you. I hope you find some answers and that things improve for you soon. I have Graves’ & have been on disability for 2 yrs. after 5 yrs. being undiagnosed. People often tell me it’s worse to be hyper but with stories like yours, I’m not so sure.

Hugs,
Pam

]]> By: vicki http://dearthyroid.org/thyurology-too-s-and-mee-for-me/comment-page-1/#comment-3911 vicki Thu, 26 Nov 2009 21:28:02 +0000 http://dearthyroid.org/?p=2572#comment-3911 Lori, I've definitely been faithful about using the restasis twice a day. The burn stinks until the 15 minutes are up and I can use the eyedrops! Doc said it would take 2 months at least. I'm trying very hard to be patient....it's not a strong trait of mine! Last blood test showed TSH back up to a 5....I don't think that helps either. Lori, I’ve definitely been faithful about using the restasis twice a day. The burn stinks until the 15 minutes are up and I can use the eyedrops! Doc said it would take 2 months at least. I’m trying very hard to be patient….it’s not a strong trait of mine! Last blood test showed TSH back up to a 5….I don’t think that helps either.

]]> By: lori http://dearthyroid.org/thyurology-too-s-and-mee-for-me/comment-page-1/#comment-3908 lori Thu, 26 Nov 2009 16:44:07 +0000 http://dearthyroid.org/?p=2572#comment-3908 the restasis took at least three months to notice a difference and if you don't use it faithfully twice a day, it doesn't work. i'd be happy to talk any time. the restasis took at least three months to notice a difference and if you don’t use it faithfully twice a day, it doesn’t work. i’d be happy to talk any time.

]]> By: Vicki http://dearthyroid.org/thyurology-too-s-and-mee-for-me/comment-page-1/#comment-3907 Vicki Thu, 26 Nov 2009 15:51:34 +0000 http://dearthyroid.org/?p=2572#comment-3907 Cannot thank all of you enough for your wonderful com ments and advice! This is such an incredible community to be involved with. Lori and Jackie- the eye doc implanted a tear duct plug in my right eye. Not much change. I am now on restasis. It's almost been 2 months now and there's no change. I still need the eye drops everyday. STILL taking that water pill to pee. Lori, I am not taking a muscle relaxer...most days I wish I was! I have more to say to you my sister and will send it on FB in a message. Thank you all once again. You're amazing women. Cannot thank all of you enough for your wonderful com ments and advice! This is such an incredible community to be involved with.
Lori and Jackie- the eye doc implanted a tear duct plug in my right eye. Not much change. I am now on restasis. It’s almost been 2 months now and there’s no change. I still need the eye drops everyday.
STILL taking that water pill to pee. Lori, I am not taking a muscle relaxer…most days I wish I was! I have more to say to you my sister and will send it on FB in a message. Thank you all once again. You’re amazing women.

]]> By: lori http://dearthyroid.org/thyurology-too-s-and-mee-for-me/comment-page-1/#comment-3906 lori Thu, 26 Nov 2009 15:50:53 +0000 http://dearthyroid.org/?p=2572#comment-3906 Bee is right on the Sjogren's syndrome. Just like Hashimoto's you need to have the antibodies. For years I've been told 'I think you have Sjogren's' but I've never had the antibodies. But it doesn't change anything, the treatment is the same for the dry symptoms but Sjogren's can wreak havoc in other ways also. It definitely should be ruled in or out. It's just some blood work to find out. Just Google for more info. Bee is right on the Sjogren’s syndrome. Just like Hashimoto’s you need to have the antibodies. For years I’ve been told ‘I think you have Sjogren’s’ but I’ve never had the antibodies. But it doesn’t change anything, the treatment is the same for the dry symptoms but Sjogren’s can wreak havoc in other ways also. It definitely should be ruled in or out. It’s just some blood work to find out. Just Google for more info.

]]> By: Jackie http://dearthyroid.org/thyurology-too-s-and-mee-for-me/comment-page-1/#comment-3904 Jackie Thu, 26 Nov 2009 14:40:14 +0000 http://dearthyroid.org/?p=2572#comment-3904 Vicki: I have had the torture chair test done. They told me that my detrussor muscle wasn't working properly. Before the urodynamics, I went to the gyne and he put a cath in and filled it with saline. All of a sudden I hear "I've never seen THAT before" Words you do NOT want to hear at the gyne office. He explained finally that he could not fill my bladder with the cath. I was spasming for some reason. So he sent me for the torture chair. I was on Flomax also. It was funny. I had a bunch left over after they told me to quit taking it and I gave it to my grandfather because he was taking it, too. He thought I stole it. I told him I was taking it and he argued that I was lying. LOL. I dribble in my pants and have to wear a Poise pad, but when I sit on the toilet, nothing. As soon as I stand up, wash my hands, I went in my pants. I just deal. As far as the dry eyes go, my friend who had her thyroid removed due to cancer is on a water pill and her eyes are really dry. She couldn't wear contacts. Her eye doc put some kind of collagen thing in her tear duct. She said it was painless and now she can wear the contacts. The collagen lasts for several months. Maybe you should ask about it. Vicki: I have had the torture chair test done. They told me that my detrussor muscle wasn’t working properly. Before the urodynamics, I went to the gyne and he put a cath in and filled it with saline. All of a sudden I hear “I’ve never seen THAT before” Words you do NOT want to hear at the gyne office. He explained finally that he could not fill my bladder with the cath. I was spasming for some reason. So he sent me for the torture chair. I was on Flomax also. It was funny. I had a bunch left over after they told me to quit taking it and I gave it to my grandfather because he was taking it, too. He thought I stole it. I told him I was taking it and he argued that I was lying. LOL. I dribble in my pants and have to wear a Poise pad, but when I sit on the toilet, nothing. As soon as I stand up, wash my hands, I went in my pants. I just deal. As far as the dry eyes go, my friend who had her thyroid removed due to cancer is on a water pill and her eyes are really dry. She couldn’t wear contacts. Her eye doc put some kind of collagen thing in her tear duct. She said it was painless and now she can wear the contacts. The collagen lasts for several months. Maybe you should ask about it.

]]> By: Bee http://dearthyroid.org/thyurology-too-s-and-mee-for-me/comment-page-1/#comment-3901 Bee Thu, 26 Nov 2009 13:37:36 +0000 http://dearthyroid.org/?p=2572#comment-3901 oops- i meant urethra not urethraq---sorry oops- i meant urethra not urethraq—sorry

]]> By: Bee http://dearthyroid.org/thyurology-too-s-and-mee-for-me/comment-page-1/#comment-3900 Bee Thu, 26 Nov 2009 13:36:54 +0000 http://dearthyroid.org/?p=2572#comment-3900 YOU MAKE SUCH GREAT SENTENCES AND PAINT SUCH A PICTURE WITH YOUR WORDS!!! i really understand what you went thru. I am presently an X-Ray/CT tech for the largest private urology practice in the country. My docs will love hearing that they're nothing but gynos on crack...hahaha!every wednesday i'm involved in urodynamics procedures on handicapped children-talk about being thankful for just a little thyroid disease...have you done any research on Sjogren's syndrome? it too causes all your mucous membraney areas and body orifices to dry up; another autoimmune disease...so this message is sent with the best wishes that you pee like a racehorse whenever your little urethraq desires YOU MAKE SUCH GREAT SENTENCES AND PAINT SUCH A PICTURE WITH YOUR WORDS!!! i really understand what you went thru. I am presently an X-Ray/CT tech for the largest private urology practice in the country. My docs will love hearing that they’re nothing but gynos on crack…hahaha!every wednesday i’m involved in urodynamics procedures on handicapped children-talk about being thankful for just a little thyroid disease…have you done any research on Sjogren’s syndrome? it too causes all your mucous membraney areas and body orifices to dry up; another autoimmune disease…so this message is sent with the best wishes that you pee like a racehorse whenever your little urethraq desires

]]> By: Lolly http://dearthyroid.org/thyurology-too-s-and-mee-for-me/comment-page-1/#comment-3899 Lolly Thu, 26 Nov 2009 13:17:28 +0000 http://dearthyroid.org/?p=2572#comment-3899 WTF I don't know how you went through all that and never told them to piss off..what I want to know is did the treatment work or are you still having problems? I would have asked for a second opinion but then again I don't think I would want to go through all that shit again. You are a great story teller and what a story it was, is... They're taking the piss problem is it wasn't out of you. Lolly WTF I don’t know how you went through all that and never told them to piss off..what I want to know is did the treatment work or are you still having problems?
I would have asked for a second opinion but then again I don’t think I would want to go through all that shit again.

You are a great story teller and what a story it was, is…

They’re taking the piss problem is it wasn’t out of you.
Lolly

]]> By: lori http://dearthyroid.org/thyurology-too-s-and-mee-for-me/comment-page-1/#comment-3894 lori Thu, 26 Nov 2009 00:59:22 +0000 http://dearthyroid.org/?p=2572#comment-3894 OMG, we are twins: Hashi here who had urinary retention and all the tests you had, and I have barely any tear production for my poor eyes. It sounds like you were not treated as humanely though and I am sorry they treated you like that. They didn't put me in stirrups and they let me pee all by myself in another room where a thingy measured my retained urine (postvoid residual). I had tests, tried drugs, had more tests, tried more drugs. I was desparate to pee but said fuck all of you, i'll figure this out and that's what i did, luckily. I went to a physical therapist who taught me exercises that helped and a showed me a certain position to sit on the toilet that would help "let it flow". Then, I found out the muscle relaxer i was taking could cause urinary retention and bingo, i stopped it and i could pee...hallelujah. I was taking Robaxin (generic - methocarbamal). Three thyrofuckin years not being able to pee and it was that drug. So, please check the potential side effects on any drugs you are taking. Even if it's not listed as a side effect, test other drugs, if you are on any. The dry eyes started several years before my hashi diagnosis, along with many others symptoms that turned out to be from the hashi's, but by this past August my eyes hurt so bad, it felt like someone was trying to pull my sockets out. I never know eyes could hurt so bad. I had sunglasses on all the time and I was already on Restasis eye drops for the dryness, plus over the counter drops and gels. It turned out after being on levoxyl (T4 only drug) for a year I was not converting T3 and all my symptoms got a lot worse, especially the dry eyes and tiredness. Anyway, once I got on natural desiccated thyroid, which has T3, my eyes and other symptoms started improving. The eye improvememt was dramatic. I am still blurry and need the drops but it is LOTS better. Restasis is the only prescription medication available for dry eyes. The over the counter drops don't work as well. The Restasis I only use one drop each eye twice a day. I only need to use over the counter stuff if i'm around anything that is irritating like smoke, the wood section in the hardware store, or the detergent aisle in the grocery store. there is a procedure they eye doctor offered me called punctal plugs, they put plugs in your tear ducts in the corners of your eyes. It's suppose to keep what tear production you do have stay in your eyes. I didn't want to do that but if the Restasis didn't work I would have had not choice. I asked the eye doctor if my thyroid disease caused it cuz i had read dry eyes was a symptom but he said there is no way to tell cuz I had on much other stuff going on. Stupid ass, all the other stuff going on is probably from my thyroid disease. I hope my experience can help in some way. Lori XO OMG, we are twins: Hashi here who had urinary retention and all the tests you had, and I have barely any tear production for my poor eyes. It sounds like you were not treated as humanely though and I am sorry they treated you like that. They didn’t put me in stirrups and they let me pee all by myself in another room where a thingy measured my retained urine (postvoid residual). I had tests, tried drugs, had more tests, tried more drugs. I was desparate to pee but said fuck all of you, i’ll figure this out and that’s what i did, luckily.

I went to a physical therapist who taught me exercises that helped and a showed me a certain position to sit on the toilet that would help “let it flow”. Then, I found out the muscle relaxer i was taking could cause urinary retention and bingo, i stopped it and i could pee…hallelujah. I was taking Robaxin (generic – methocarbamal). Three thyrofuckin years not being able to pee and it was that drug. So, please check the potential side effects on any drugs you are taking. Even if it’s not listed as a side effect, test other drugs, if you are on any.

The dry eyes started several years before my hashi diagnosis, along with many others symptoms that turned out to be from the hashi’s, but by this past August my eyes hurt so bad, it felt like someone was trying to pull my sockets out. I never know eyes could hurt so bad. I had sunglasses on all the time and I was already on Restasis eye drops for the dryness, plus over the counter drops and gels. It turned out after being on levoxyl (T4 only drug) for a year I was not converting T3 and all my symptoms got a lot worse, especially the dry eyes and tiredness. Anyway, once I got on natural desiccated thyroid, which has T3, my eyes and other symptoms started improving. The eye improvememt was dramatic. I am still blurry and need the drops but it is LOTS better. Restasis is the only prescription medication available for dry eyes. The over the counter drops don’t work as well. The Restasis I only use one drop each eye twice a day. I only need to use over the counter stuff if i’m around anything that is irritating like smoke, the wood section in the hardware store, or the detergent aisle in the grocery store. there is a procedure they eye doctor offered me called punctal plugs, they put plugs in your tear ducts in the corners of your eyes. It’s suppose to keep what tear production you do have stay in your eyes. I didn’t want to do that but if the Restasis didn’t work I would have had not choice. I asked the eye doctor if my thyroid disease caused it cuz i had read dry eyes was a symptom but he said there is no way to tell cuz I had on much other stuff going on. Stupid ass, all the other stuff going on is probably from my thyroid disease.

I hope my experience can help in some way.

Lori
XO

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