Thyrants And Thyraves: And How Do You Feel About Your Doctor?!
Today, we have a very special Thyrants post! Not only did you rant your beautiful hearts out; we also asked you to complete a sentence with respect to what you’d like to say to your doctor. Beautiful work, DT’rs.
What Thyrants or Thyraves from the week do you have and desperately need to get off your chest?
KB: I’m starting to think that I made the wrong decision when it came to treatment I went with radation instead of surgery but I was so scared of just the word surgery I felt like I was being pushed in a million directions from all sides. I was feeling so vulnarable and alone at the time even the surgeon said he didn’t really want to do the surgery because my thyroid was a goiter ( he rated it a 5/6) and 5 is the biggest on the scale they use ” ” so i guess in short I’m feeling like I was used the doctors nurses even the specialist that came in my hospital room to poke and proude at me were no help my husband did all he could but left it up to me to decide and after all this I feel like I’ve been put threw a blender and someone pushed pulse a thousand times. Just to find out that I might need surgery anyway.. My question is how do u find the courage to go threw w even the word surgery??
JM: In a nutshell – weight gain (obviously) despite the synthroid, fatigue, joint pain, dry skin, constipation, cold intolerance, etc…
FG: I dislike being 20 pounds for my height 5’0″. I don’t like not being able to walk and breathe easily like I used to…I feel like a couch potato when I sit down,then can’t walk to well when I get up from my computer or to bring my hubby things at work. I am cold when it is slight chill in air or hot when it humid outside which wind,humidity, and snow make hard to breathe anyway along with distance. I don’t like being fatiqued almost on a daily basis.
KL: Got my RAI this morning, about six weeks post surgery. I am more nervous about the results of next week’s scan than anything. Despite reassurances from my surgeon I am struggling to believe the cancer hasn’t spread when it was already in my thyroid, 1/4 of the removed lymph nodes, and a 3cm mass at the base of my neck. Trying to keep my mind busy til then, hard to do when isolated in my guest room!
CM: i know exactly how you feel, I feel like I have been put through the blender, so to speak, too! I did the surgery, really, due to believing I had a parathyroid tumor after being told no by so many doctors…So, basically when offered surgery for an unusual biopsy result–I just did it in hopes of them finding the parathyroid tumor (which WAS inside my thyroid btw)…I did it out of sheer desperation and in hopes of feeling better. Unfortunately, thyroid meds (natural or synthetic) and me do NOT get a long. So, now I am struggling with getting my tsh to somehwere near normal VERY slowly .I wish you all the luck–and hope you are on the road to recovery soon 🙂 It seems we have to be our own docs with some diseases.
NWW: Well its been 5 days gluten free and actually feeling great. I have a ton more energy. My foggy brain is functioning. I can’t believe that just changing my diet could change the way I feel so much.
JS: Exhausted!! Not sleeping well at all. But my mood has been stable all week. So I’ll count my blessings in that respect!!!!! 🙂
EEB: Right now I’m trying to get adjusted to BP meds, and I was just told it can take 6-8 weeks! I WAS feeling better, now I’m tired again. Don’t want to move tired. Brain-fog tired. I had low bp pre-Hashis, now it’s high. 😛
AZ: Like a dummy, I ate peanuts in a shell the other night while watching the B Ball game-now I am paying with the slo-motion feeling that I get from them!! WHY did I eat them!?!?!? CRAP!
TK: I had the surgery for Graves instead of RAI. We thyroidless folk have all the same issues as hypos – because we are hypo! with no thyroid to produce even a little T hormones, we are completely reliant on finding a med that works for us. I spent 8 yrs thinking I was doing OK on Eltroxin. I never realised that all my problems were hypo symptoms ( I was seriously under-medicated) Dr gave me sleeping pills, anti-depressants, x-rays for carpel tunnel – basically implied I was neurotic & never once considered my thyroid meds! Then GSK changed the formulation & I was allergic! When I switched to Whole Thyroid, the improvement was immediate! I’m a long way from ‘normal’ whatever that is, but way better than 2 yrs ago. It is such an involved process, finding the right balance with meds & supplements. But I’d rather fight that battle than give up completely which is where I was at in ’08.
LHP: i just read my life history i had RAI in ’02 been going down hill since i felt better being hyper but b/p was way too high so now i am tring to find a dr that will take my insurance thats a battle in itself grrrrrrrrrrr
KC: doing more research on my hashimotos……realizing that my 10 year old girl more then likely has it. More things make sense now. My allergies, my tummy issues, the arthritis, everything. I have lymphedema badly in my legs, can hardly walk most days. I just want my life back.
CC: read some old posts on my blog yesterday and was reduced to tears on more than one occasion, reading old posts where I clearly didn’t know what was going on at the time and was posting with such confusion & frustration. I felt like I wanted to reach into the monitor and shake that girl who was posting back then, and tell her that it was so blindingly obvious why she felt SO crap, worthless and couldn’t muster up the energy to do anything 🙁
RI: Wondering what is going on because I feel like my thymencha is geting so bad that I am not doing what I need to so as a result I am making my mom really upset with me!
MSB: My biggest rant is I wish it weren’t so invisable to others. Most people make me feel like a hypochondriac. I don’t know why because I have never been one before, I have always been upbeat, positive and powered through everything in my life. They can’t physically see some of the things I suffer with and therefore they must not exist!
MR: I am tired of the diabetics getting all the sympathy!
Good morning! A new twist for (thyrants/thyraves) complete this sentence, please “When I sit across from my doctor, I feel…”
CR: why do you never listen to me, then look at me like you’re stupid when I turn out to be right? lol
CC: like we’re taking another step together along the thy-way”
DAT: like smacking him upside the head but he is history now and my endo is still on my “like” list!
DW: When I sit across from my doctor, I feel…like leaning over to him and giving him a slap for not listening to me or treating me years ago
EEB: When I sit across from my doctor I feel relieved that I have insurance and a doctor willing to run tests!
CKP: like b*tch slapping him
SR: When I sit across from my doctor, I feel like yet again this is not the one.
When I sit across from my Endo I am in awe. (Just wish I could get back to him.)
KC: I feel like giving her a smack on the back of her head for being stupid!
MBD: So happy because I finally found someone who seems to listen way more than the one I had for the past 10 years. In two visits he said he had a hunch about me, whereas my last one never had a hunch in 10 years (probably b/c she didn’t listen to me!)
LHP: when i sit across from my dr. , i feel like ……slapping and praying that he will become human soon
MNI: “like I want to slap her…I know she has no idea of how I’m really feeling. Oh btw Doc, you could stand to lose some weight, too…where do you get off?”
AMHS: “smarter than him LOL”
KC: “hey…..the joke is….what do you call a doctor who scored 50th in a class of 50…..DOCTOR! Just cuz they have MD behind their name doesn’t make them smart….just means they passed the test.”
ZL: I feel confused and frustrated. you make me wait almost an hour to see you for only 10 minutes of your time.
CB: grateful that she added the thyroid test to the blood test on a hunch – wouldn’t have realized anything was wrong otherwise
Thank you for sharing more of yourselves with us! We’re so proud of you — you bring it, every day. On that note, what coping strategies would you share with your fellow patients? What resonates the most with you? Do you have a thyrant? Do you have something you’d like to say to or about your doctor?
share it with us in comments.
Tags: bad doctors, doctors working well with thyroid patients, endocrinologists not listening to their patients, good doctors, graves disease side-effects, hashimoto's side-effects, hyperthyroid issues, hypothyroid patient laments, thyroid cancer side-effects, thyroid patient discussions, thyroid patients feelings about their doctors, thyroid rants, thyroid success stories, thyroid support