Like a Rollercoaster that Goes Down, but Never Comes Back Up
Dear, Dear Thyroid Community:
I was diagnosed with papillary carcinoma about three years ago. All of a sudden my thyroid was totally removed. After dissection of my thyroid removal, it was found I did not have cancer. It was a mistaken diagnosis. The pathologist apparently left the biopsy in the needle too long, only one out of four only came back positive. They didn’t leave any of my thyroid left and injured my parathyroid in process. Of course it has really messed up my life in many ways:
- I couldn’t find a lawyer to go up against Duke for the mistake.
- I gained over 50 pounds.
- My family says I went crazy because I left my husband after 33 years.
- I have all kinds of different and weird side effects, not just from the supplement but now I have high blood pressure, slow metabolism, liver problems, and emotional ups and downs.
People don’t realize how much your thyroid does for you. I feel so ugly, fat and get very down.
I have lost my job three times, partly because they were afraid I was going to be out for chemo or radiation therapy (even though I didn’t have any). Then I would get sick from trying to correct calcium and Vitamin D imbalance. My body and bones ache, and even though I’m on medication for depression/anxiety, insomnia and other things, I sometimes just got emotional. Anyway, this has caused more problems in my life than can be imagined. They could of at least left part of it.
My question is….We can do heart, liver, lung, kidney and other transplants but no damn thyroid transplants. WHY? We can also do skin grafts, I think Japan is the only one who has tried this.
Now I have a spinal implant due to spinal nerve dying, whether it was related to being overweight or medication side effects, who knows. Sometimes doctors don’t know the answer so they use their license to PRACTICE MEDICINE. We forget that, now it’s just..”we’ll try this and we’ll try that, and if that don’t work we’ll try something different.”
This is my body and I have to live it the rest of my life. I want it fixed. I want to lose weight so I don’t hurt in my bones, my back, my mind. I want to feel better about myself. Going to therapy doesn’t help (been there done that), meds don’t help (been there, done that too). I can’t sue because it’s DUKE UNIVERSITY and every lawyer I talked to in the area wouldn’t touch it. No one knows what an INFARCT is. It is when a biopsy is left too long in the needle and masks itself as cancer.
The sad part is I am a nurse, can’t find a job in the area (near Duke) in Raleigh NC area. I get nauseated from the meds, and of course the insurance doesn’t pay or you can’t have but so many pills for insomnia, nausea, and/or anxiety because of the tier rating.
I’M TIRED OF BEING SCREWED BY DUKE UNIVERSITY. This is not the first time, either. I’ve had a hysterectomy (unnecessary), BTL, lost my daughter at Duke (she died) after she was dropped in the OR on the floor from a gurney. Unfortunately there are other things. It took one girl 15 times to get blood from my arm, but she was learning and practicing, so I thought I would be nice. I would give anything to go there to get my Physician’s Assistant license, but I can’t afford school, with no job. Also the weird part, is that my ex-husband was an administrator there, funny huh? He retired a few years back, but of course he had to keep working at another university to make ends meet (he has everything from our separation). I can’t afford a place to live, can’t get a damn job, my adopted child will not have anything to do with me. I know I am not crazy, I am a good hard worker, great nurse. My patients loved me and my students I taught in high school still love me and want to hang with me.
It’s a shame when no one will help, or you have exhausted all avenues of hope and help. I can’t even afford to take care of my parents anymore because I’m not nursing.
If anyone has lost weight after thyroidectomy please let me know. I have sleep apnea now and a very slow metabolism. Due to my high BP that has also caused more problems. HELP ME PLEASE!!!
Tags: Dear Thyroid Letters, like a rollercoaster that goes down but never comes up, papillary carcinoma, questions about weight loss post-thyroidectomy, Susan Harrod, thyroid cancer, thyroid cancer community, thyroid cancer patient letters, thyroid cancer support, thyroidectomy, weight gain