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Comment Of The Day: August 26, 2010

Post Published: 26 August 2010
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Category: Comment of the Day
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Why are we hocking you to participate in the Thyroid Cancer Awareness blog tour? Why are we incessantly hocking your brains out about asking every thyroid cancer patient and survivor with a blog to participate in the blog tour, right? Here’s why: When you were diagnosed, did your doctor say “Hey, it’s just thyroid cancer; it’s not real cancer?” When you told your friends that you had thyroid cancer, did they look at you like “And…?” Did you get the support you needed from family and friends? If not, why not? Do you believe that the public at large understands what thyroid cancer is? How destructive thyroid cancer can be? Do you think people know what a thyroid is or what it does? How many people do you think are walking around with thyroid cancer and don’t know it? How many times have you said “Get your neck checked”? When you did, how many lives do you think you impacted or saved?

Ask 5 bloggers to participate in the blog tour. Ask them to ask 5 other bloggers to participate. Every single voice counts. If 100 people participate in the Dear Thyroid Blog Tour, and each blog get an average of 10,000 visitors a month, that’s 1,000,000 visitors who will have been educated about thyroid cancer, packaged in quite a lovely post, if I do say so myself.

We’re not asking for money. We’re asking for 5 minutes of your time to email folks and 30 minutes to write a post for September. That’s it. Please email Joanna for details. PLEASE, PLEASE, PLEASE get involved.

Still not convinced?
  • About 44,670 new cases of thyroid cancer will occur (33,930 in women, and 10,740 in men)
  • Thyroid cancer will cause about 1,690 deaths (960 women and 730 men).

The following survival statistics come from the AJCC Cancer Staging Manual (7th ed)

Papillary thyroid cancer 5-year survival rate*

  • Stage I — 100%
  • Stage II — 100&
  • Stage III — 93%
  • Stage IV— 51%

*based on patients diagnosed 1998 to 1999

Follicular thyroid cancer 5-year survival rate*

  • Stage I — 100%
  • Stage II — 100%
  • Stage III — 71%
  • Stage IV— 50%

*based on patients diagnosed 1998 to 1999

Note: All the stage III and IV patients with follicular or papillary thyroid cancer are, by definition, over 45 years old.

Medullary thyroid cancer 5-year survival rate**

  • Stage I — 100%
  • Stage II — 98%
  • Stage III — 81%
  • Stage IV— 28%

**based on patients diagnosed between 1985 and 1991

Anaplastic Thyroid Cancer

  • The five-year relative survival rate for anaplastic (undifferentiated) carcinomas, all of which are considered stage IV, is around 7 percent (based on patients diagnosed between 1985 and 1991

She. Me. Is done pontificating.

Loves,

Katie

— COMMENTS OF THE DAY–

We had some kick ass posts today, as we do everyday, in my humble opinion. Every thyroid patient who writes Dear Thyroid, writes with tremendous fervor, candor and bravery. Your words resonate deeply and drive your point home beautifully. Every single comment – matters. When you reach out to other patients and lend support or share your story, you connect us as a community and remind us that we aren’t alone. Bravo to you.

Thyrogen Can Quite Literally Kiss My Ass, Dear Thyroid Letter, written by Alexa

“After debating which cheek to get it in I ultimately chose the right cheek, poor thing. I did not feel the needle going in, but, did I ever feel the BURN of the medication.” — Alexa’s Dear Thyroid letter was about her Thyrogen shot. If you missed it, please check it out and connect with Alexa in comments. Cleverly and humorously, she depicted a horrific event in her life; and took the time to share it with all of us.

Comment of the day…

Chris Kidwell Prestano says:

Don’t worry. We all are taken by surprise. I made a pair of panties that says “I take it in the ass for my cancer.”

Thyroid Retrofit, with Apologies to Joseph Campbell, Guest Blog post by the wonderful, Dr. Gottfried

“Why bother, you may ask. My TSH is now fine. Bother because our beliefs determine our health. As Christiane Northrup stated so pioneeringly, “Belief becomes biology.” She goes on: “If we don’t work through self-destructive thoughts, our thoughts set ourselves up for physical distress because of the biochemical effect that emotions have one our immune and endocrine systems.” — Dr. Gottfried hits another homerun, hard and fast, and flawlessly. This post is STUNNING, insightful and filled with mythology, immune system facts and a HEAPING dose of things to ponder. In a word, Dr. G. is one of our thyheros! She really is. If you missed her magnificent post, please, please, please read it and connect with her in comments.

Comment of the day…

Bee says:

I’ve held these beliefs intentionally for most of my adult life. Being in the medical profession, I also view my body and the things that go on with it as my own personal science experiment. I knew that fingernails were an indicator that things could be “off” internally. So I watched my fingernails go thru these weird changes for years. Lo and behold a cardiac birth defect was found in my 40th year. This is just 1 example of the subtle changes I’ve noticed when my body is trying to tell me something. Because of these beliefs, I’ve been aware of nutrition and the importance of sleep and exercise.

That doesn’t always mean that I’ve been on the high road to health; but I was aware that the negative things i did to myself would or could or should impact me down the road. It’s weird- I look at the things I am now going thru with much the same “guinea pig” approach. I don’t think I create more stress worrying about my illnesses. But because I continue to live my life as fully as I can on any given day, stress from others is all around.

What I’m finding interesting is the fact that I view this massive weight gain kind of anthropologically. My ancestry was from parts of the world where famine could and did have population consequences; thus, women from that part of the world tended to store fat to nourish their young during famines. Even tho my body has drastically changed with Hashi’s, I’ve been interested to see just WHY i’ve continued to hold on to these fat stores. My waiting proved eventful. I am just getting over a horrendous bout of mucus colitis that lasted 2.5 mos. Food wasn’t fun. Food hurt. But my body- the efficient machine that i’ve at times neglected-had enough fat stores to keep me relatively healthy- Hell, lets just say my fat helped keep me alive- bcuz I really couldn’t eat much. And it provided me with enough energy to keep working and assisting ailing family. It would’ve been very easy to give up, but I’ve also been born with a stubborn, competitive streak and I wasn’t about to give in to this bit of nonsense.

So I don’t say “why me”- i just realize that some of us swim in shallower parts of the gene pool. “Stinking thinking” can certainly get in the way but I’ve been madder at my

professional medical care than this vessel that’s housing my mind bcuz my care-or lack of it- has had a negative impact on HOW LONG I’m able to habitate this vessel. As I told my son, I take all these meds so I can watch my children grow old and my grandchildren grow up. So in many ways I’ve also got to thank the chemists and researchers who continue to also use us as guinea pigs for I would’ve surely been dead at this ripe old age of 58 if it weren’t for better living thru chemistry

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