DEAR THYROID^TM

“Thanks to My Mad Hyper Skills, I’m Hairless And More” written by Graves’ patient Dee, invoked a lively and much needed (ongoing) discussion about memory issues and symptoms that remain untreated with or without a balanced thyroid.

Doctors that don’t hear us, should read this post and each of the exquisitely, heartbreakingly honest comments from every member of the Dear Thyroid community. I digress… We are more than the sum of our numbers.

With every comment, we learned more about our respective diseases and felt less alone. BRAVO and GRATITUDE to each of you.

Thank you to everyone for your courage, kindness and willingness to share so much of yourselves. Thank you, Shan for saying this;

Shan M. says: March 16, 2010 at 8:18 am

Dee, when I was going through all the bad mental and physical symptoms prior to diagnosis, I had no idea what was happening to me and hoped that I could please just die.

Nobody could see that it was a disease even though I was telling everyone I needed help. I avoided seeing a doctor because I didn’t want happy pills. It was only when I had diagnosed myself that I told a dr. and was tested. I have Hashimoto’s.

You are not alone and I’m proud of your strength in telling your story. It is alarming for us all to see each other’s suffering, yet there is some comfort in knowing we’re not alone. You are an inspiration with your determined attitude!

“What Does Autoimmune Awareness Mean to Me, HD In Oregon?” a wonderful autoimmune awareness post from a thyroid cancer survivor. HD eloquently explained the correlation between thyroid cancer and thyroid disease, as well as discussing awareness from all perspectives; doctors, patients and families. If you haven’t caught his post, please do; it’s well worth the read.

Our comment of the day goes to Lolly. Thank you every one for commenting. Lolly, thank you for sharing your perspective on autoimmune awareness; including what you feel we need, and your autoimmune back-story. Thank you for saying this…

Lolly says: March 16, 2010 at 2:04 pm

I agree great letter HD you hit the nail on the head with everything you wrote I couldn’t have put it better myself.

It’s not just about thyroid autoimmune but thyroid disease in general including thyroid cancer patients they have the same symptoms as someone who’s hypo hyper had RAI surgery.
It’s getting that fine balance of medication and it’s about time Doctors and endocriminologists realised and that not one size fits all just as not one medication can work for one person.

Also there are so many AI diseases that Thryoid is just one of so many and more funding needs to go into what triggers it in the first place we know that stress environment and life style are factors but that’s a broad spectrum there are other chemical changes in the body which are beyond are control for if we could control them we wouldn’t be fighting an army in our bodies. I have 3 AI diseases well 4 if you include GO and each one is different but none the less not understood so I have never got a real good explanation as to why it happened in the first place if I knew that maybe I could do something about it. This is where research is needed to funded a good friend has just been DX with MS another AI disease.

Great post.

Lolly

Thank you to everyone for having the courage to take your diseases out into the world where they belong.

Tags: Comment of the Day, community building, Dear Thyroid, Health Community, health support community, literary community, literary support, thyroid community, thyroid support community

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