‘chronic autoimmune conditions column’ Archives
Chronic Snarkopolist: Surrender Into Support
Hello my loves! Have I mentioned how much I adore you? You are so brilliant and beautiful! I was so overwhelmed with your kind words and thoughts last week. I’m always so amazed [Read] | 7 responses.
Chronic Snarkopolist: The Tidal Wave
Hello my loves! Thank you so much for your generous spirits and kind words! I’m completely smitten by you. This week I took time to reflect and sit around in my pj’s a great deal. [Read] | 8 responses.
Chronic Snarkopolist: Learning to Listen with Love
Hello my loves! Sharing stories heals us. Stealing grief or comparing illnesses in order to one-up or diminish another person’s pain does not. This message was brought home to [Read] | 20 responses.
Chronic Snarkopolist: A Big beautiful mess!
Living out loud is messy. Actively healing our illnesses is messier yet! Several friends listened to me lately– truly listened to me. And I had the opportunity to offer the same [Read] | 12 responses.
Chronic Snarkopolist: Stealth Ninja Power – Using Ambiguity as Strength
My endo plugged his fingers in his ears when I said, “I don’t think any of my past endo’s have been listening to me.” He laughed and said, “I am listening to you now.” [Read] | 4 responses.
Chronic Snarkopolist Sometimes Sick is Ugly
It is five in the morning and I cannot sleep. Tomorrow I prepare and pack my bags to go to Atlanta and meet with my team specialists for tests and follow-ups; and some news. Frankly [Read] | 23 responses.
Chronic Snarkopolist: My Internist recommended a book called, How Doctors Think by Jerome Groopman M.D.
I read it a month ago and blogged about it even. I loved this book. I'm glad she told me to read it. I'm going to talk about it here because I think it is ESPECIALLY powerful for my [Read] | 8 responses.
Chronic Snarkoploist: Alive – With Pink Blooms!
I call it the yin yang. When we are BETTER than we were. When we are NOT dying (as fast or anymore). But we are still CHRONICALLY ILL. We are still not normal. We are – [Read] | 20 responses.
Chronic Snarkopoloist: Look for Unicorns: What Do Doctors REALLY Want?
Have you ever wanted to just grab a doctor by the scrubs and say, “WHAT? WHAT DO YOU WANT? WHAT WILL MAKE THIS EASIER FOR THE TWO OF US?” This column is prompted by the most [Read] | 26 responses.
Chronic Snarkopolist: ME TOO! When I’m Understood I’m Healed
Tonight I spoke to a chronically ill patient I have become friends with over the last few weeks. Our public conversations are always silly and funny. But in private - unlike with others [Read] | 13 responses.