Dos and Don’ts for Thyroidectomized Patients
Sarah Young’s Do’s and Don’ts for thyroid cancer survivors. She is sharing her story and her list with us. We always want information and resources, so we can formulate our own individual opinions. Yes? Yes. I also think this applies to many of us with thyroid autoimmune diseases and conditions. Speaking for myself, it does. Thanks, Sarah!
DOs and DON’Ts FOR THE THYROIDLESS
Throughout my thyroid cancer experience, I have had unlimited amounts of support from my family and my closest friends. I have even been supported by new friends online who are having the same experiences. I am one of the lucky ones. I only have to deal with the annoying “helpfulness” of acquaintances and strangers. So, to help those of you who know someone who had thyroid cancer or someone who is struggling to overcome uncontrolled hypothyroidism, here is my list of dos and don’ts.
DON’T EVER SAY…
“I know someone who had thyroid cancer and they’re totally fine!”
Would you say that to someone whose house burned down? “My friend’s house burned down and they are fine now!” No, you wouldn’t say that. So don’t say that to someone who also just had a devastating, life-altering experience.
“If you had to get cancer, that’s the best one to get, right?”
This one is my favorites, because even I said it when I was first diagnosed. What it really means is, “I’m not going to look sick to you and I probably won’t die from this, so people around me won’t have to feel guilty and uncomfortable.”
“At least you are alive.”
Again, is that something you would say to someone who told you their house burned down? Yes, I am happy I am alive. At least we are ALL alive. That doesn’t mean it is okay when crappy things happen to us.
“Have you tried (fill in the blank here) to lose weight?”
No, I haven’t tried that! Wow! What a lifesaver you are! Let me assure you - I have tried EVERYTHING.
“Were you a smoker?”
No. But would that make you feel better about your diagnosis? Like I brought it on myself or something?
“Not everything is because of your thyroid.”
You’re right! Not everything! Just my body temperature, my metabolism, my hormone regulation, my digestion, my ovulation, my energy level, my brain processes, my hair, my nails, my skin and MY MOOD.
“What can I do to help?”
We are tired. ALL THE TIME.
That’s right – just don’t say anything. Listen to us vent, and then don’t comment.
Be there for us, and cut us a lot of slack. Sometimes we get overwhelmed and we overreact to things. Imagine waking up one day and not having any control over how “off” you feel. Imagine having the rug pulled out from under you, and everything you have ever known as normal is GONE. Sometimes we just don’t have the energy to pretend that we are the same. We’re not.
I am doing well…I really am. And I know how lucky I am. I know how much worse it could be, and I am grateful for what I have. But that doesn’t mean I don’t miss life as I used to know it. That’s why I keep fighting. I am working so hard to put the missing pieces back together, and I have to believe that someday I will. Just don’t tell me that you know someone else who did…and now they’re totally fine.
Tags: how to support thyroid patients, my brain processes, my digestion, my energy level, my hair, my hormone regulation, my metabolism, my nails, my ovulation, my skin and MY MOOD, thyroid cancer and thyroid disease are life changing, thyroid cancer patient stories, thyroid Not everything! Just my body temperature, what not to say to thyroid patients, what to say to thyroid patients